Help-anxiety, how do you cope?

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Regular Member

Date Joined Jun 2010
Total Posts : 318
   Posted 6/14/2010 11:00 AM (GMT -7)   
How do you deal with this disease? I have developed such severe anxiety over this last flare up.
I'm not new to all of this either. I was diagoinsed with UC about 14 years ago. Managed well at first then got a flare from hell that ended in emergency surgery/j-pouch. Had multiple complications, etc,etc, but did well for the last 8 years. Then recently the pouch just went into a major flare ( pouchitis) and I was so sick.......ended up in the hosptial.........put on remicade. The remicade put me into a remission but the side effects are so bad. The surgeon is going in next week to look for pouch malfuntions. The GI thinks I might have CD although every test is coming back UC and I have no other CD signs ie fistulas, abcesses, ulcers above the pouch, etc. Possible pouch removal? No one is quite sure what to do and either do I. This all happened so fast. BTW, I'm on lexapro and seeing someone.
Help-how do you all deal? This is so not like me.
PS I also posted this on the UC board so sorry for a double post.

UC 1996
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
Multiple complications
J-pouch redo- July 3,  2001
Take down-Jan 3,  2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/14/2010 11:26 AM (GMT -7)   
Hey Susan!! I have had CD for almost 35 years and about 2-3 years ago I developed really bad anxiety related to my CD. My family doc prescribed Xanax to help out on those bad days, and its really been helpful. Seeing my therapist helps too.

Its no wonder we have anxiety with these darn diseases, they are miserable.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Dec 2005
Total Posts : 637
   Posted 6/14/2010 12:33 PM (GMT -7)   

I see a pyschiatrist, that helps some, currently on Remeron, don't mind it at all, but really I cope by using exercise.

I try to stay away from benzos(valium, ativan), even when I am having panic attacks.  They do work, but I feel as if I have failed when I need to use those.  They are so hard to get off of too, none this year so far.

I dunno, exercise just gives me good positive feelings all around, and I hear it helps fight osteoporosis.

I see alot of the same people in the gym, and I wonder, do they have diabetes, are they fighting off panic attacks, or do they just want to look good?

Elite Member

Date Joined Jan 2010
Total Posts : 10150
   Posted 6/14/2010 12:57 PM (GMT -7)   
I'm not surprised you're anxious at the moment, with all that going on. As unpleasant as it is, maybe it's better to accept that a certain amount of anxiety is natural or normal for the time-being.

At least, that's my way of dealing with things. I do have some valium prescribed but so far have not used any of it. Anxiety-wise I'm not doing too bad at the moment. My symptoms have been stable for a few weeks so nothing there to really induce major anxiety - except for a weird accute dizziness/nausea attack a couple of nights ago. But I was so busy feeling utterly sick I actually had no space left over for anxiety.

I know it's much, much easier said than done, but try consciously not to worry about what will happen. You don't actually know and worrying won't affect the outcome at all. But it will make you feel a lot more stressed in the present, to no good affect whatsoever.

Good luck; I hope this is resolved soon.
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