How do you deal with this disease? I have developed such severe anxiety over this last flare up.
I'm not new to all of this either. I was diagoinsed with UC about 14 years ago. Managed well at first then got a flare from hell that ended in emergency surgery/j-pouch. Had multiple complications, etc,etc, but did well for the last 8 years. Then recently the pouch just went into a major flare ( pouchitis) and I was so sick.......ended up in the hosptial.........put on remicade. The remicade put me into a remission but the side effects are so bad. The surgeon is going in next week to look for pouch malfuntions. The GI thinks I might have CD although every test is coming back UC and I have no other CD signs ie fistulas, abcesses, ulcers above the pouch, etc. Possible pouch removal? No one is quite sure what to do and either do I. This all happened so fast. BTW, I'm on lexapro and seeing someone.
Help-how do you all deal? This is so not like me.
PS I also posted this on the UC board so sorry for a double post.
5 asa, predisone, 6 mp
X-mas present- Dec 26, 2000
Emergency j-pouch surgery
J-pouch redo- July 3, 2001
Take down-Jan 3, 2002
Chronic pouchitis: cipro, pentassa, xifican, cortioam, canassa, leviguin, lexapro, vit D, fish oil, probiotics, lot's of other vit's
Latest flare April 27 2010 Hosptial for 1 week-remciade
Possible CD, Possible pouch removal-anxiety-can you blame me?