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Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 6/14/2010 6:20 PM (GMT -7)   
Hi all,
was wondering how common many of you suffer from headaches.  I know mine do get triggered from the pentasa and being palced on elavil again has helped but recently with my flares I have had to take more pain meds than norm I think this is causing residual headaches.  Do any of you find things that help?  I tend to take excedrine tension headache for these which is just tylenol with caffeine at times I just take the tylenol.  Anyone else have suggestions?  Does anyone else sufer from these as well?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined Dec 2008
Total Posts : 75
   Posted 6/15/2010 3:21 AM (GMT -7)   
I get lots of headaches and I think its from my Humira. Like many others on here, shortly after my shot I get them and they can last for a few days. I also just discovered Exedrin Migraine and that stuffs works very well on me. I think its that little boost of caffeine that kicks the pain right out. I just started Canasa and it seems the headaches got worse. I'm also on Entocort so it could be all 3! Who knows. Ive given up on trying to figure out what causes all my symptoms. Its very frustrating :) Good Luck to you.
27 yo Female, Crohn's, stricturing type- terminal illeum.
symptoms at age 2....Diagnosed at 6
Bal-resection 1998
Have tried it ALL Currently on Humira weekly, D3, Entocort, B-12 shots, Primal Defense, Multi

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 6/15/2010 5:18 AM (GMT -7)   
about 6 years ago I started getting headaches, not sure what triggered them to start and I'm not always sure what triggers each particular headache. As far as what works, I'm still working on that too. I admit I take the Excedrin Migraine once in a while, but it has NSAIDS in it, so it is not something that we should be taking. I try to stick to tylenlol. But I have some RX stuff, Fioricet and Imitrex IM. They help, but if I have a really bad headache they just take the edge off. I do know that one trigger for me is weather changes, so summer time is not good, the constant change from dry to humid puts me in a headache state.

If you are getting them a lot you might want to see a neurologist. I see one who has been able to help me so that I don't get as many. I am on some preventative meds and then the medications to stop it when I have a break through headache.

Two things I can not deal with, headaches and nausea. Unfortunately CD gives me nausea and now I get headaches. Pain I can take the others, not so much.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/15/2010 6:12 AM (GMT -7)   
I know that I can get the rebound headaches from my pain meds, so when I have a headache I generally will take some Extra Strength Tylenol and it usually works pretty well.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 6/15/2010 7:36 AM (GMT -7)   
i also get rebound headaches...
def not fun to have n can be very debilitating
         HV Crohns..pyoderma gangrenosum..anxiety..neuropathy...fibro
                      seizures ..totally deaf within last yr                                   
  meds...lyrica..valproic acid..pentasa..b 12 shots ..ativan..diazepam..dilatin  


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