Regarding Diet

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New Member

Date Joined Jun 2010
Total Posts : 5
   Posted 6/17/2010 4:00 AM (GMT -7)   
Regarding diet, he always has "bad episodes" when he has fried or spicy food. Apart from that I am not sure what to do all of the time. I don't understand what sets it off sometime, as his GI doesn't give me any advice on diet. He just says that there is NO proof to suggest food is responsible for the disease and wont help me in this regard.
I just have to try and guess what is bad for him and what isn't. I still haven't figured it out, even though my whole life is based on cooking and feeding him the " right" things. I made him lentils and rice yesterday and spent whole day crying with him because of his pain as a result of the meal, he had the exact same dish a few weeks ago and didn't have any problems, so what is wrong this time? I have NO IDEA what to give him and what NOT to give him at this time in a flare up. He is losing so much weight. Two weeks ago he was weighed at the hospital and he weighed 55 kilos and he was again weighed a few days ago and he has come down to 49 kilos.
I can only give him co-codamol 15/500 and don't have anything stronger to give him for his pain. I give him therapy with massages and wait on him hand and foot. I slave all day to make him happy but still he is not getting better.
I can't work as he needs me at home and doesn't feel comfortable with anyone else. I am on anti-depressents and just feel worthless.
*Gave your post a title*

Post Edited By Moderator (Nanners) : 6/17/2010 7:19:13 AM (GMT-6)

Elite Member

Date Joined Jan 2005
Total Posts : 24909
   Posted 6/17/2010 4:18 AM (GMT -7)   
                   Co mod for anxiety/panic...crohns and alzheimers  


Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 6/17/2010 6:18 AM (GMT -7)   
I agree with Lyn you are NOT worthless, just selfless. I was first diagnosed nearly 35 years ago at the age of 18. My Mom, bless her heart, would cook food for my siblings, and then prepare separate meals especially for me. At that time, and even today, I follow a low residue diet. This diet is easy to chew and easy to digest. It is much less restrictive than the SCD and Makers Diet as you have to strictly follow those diets to a tee. Many dieticians use the low residue diet to help folks get out of a flare. It might be easier for your son to follow this diet, than one of the others.

Hoping and praying the docs can get your son feeling better soon.

Big Hugs
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Nov 2009
Total Posts : 145
   Posted 6/17/2010 7:05 AM (GMT -7)   

Possibly Enteral Nutrition might be an option at this point?  Look up "Writer" and what she has to say about it on this forum, or anyone else who has done that.

Do you keep a food journal?  I know it's frustrating to know that what works one day might not work the next, but a food journal has allowed me to keep track of what possible trigger foods are.  Just a thought....

Hang in there!  You are in a tough position that I cannot even imagine.....

newfoundsun  (my blog about this journey I have just started)
Crohn's diagnosed 11/12/09
Cytomel and Levoxyl for thyroid.  Supplements for all else as per my ND.

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 6/17/2010 7:42 AM (GMT -7)   
It is very common for foods to be fine one day and a huge problem the next :-). You are doing a great job there: please don't feel that you are doing the wrong thing.

I really would encourage you to look into enteral nutrition. You can find more information by clicking on the "diet" link in my signature, or by searching for "Writer"s posts, as Newfoundsun suggests. A food diary is also a great idea, and you can find more info on keeping one, again, in the diets link in my signature.

Spicy and fried foods can be a problem for many of us, so it sounds as if you are on the right track in avoiding those foods.

One thing that might work is to cook extra, and then freeze *small* servings of any meal that seems to have worked in the past for your son. With time, he may well get to know his body better, and be able to tell you what he thinks he will be able to eat for a meal, before you cook and serve it.

Lean protein, such as chicken or fish, works well for many of us. A lot of us do very well with mashed potatoes, too.

Here is a good thread started by one of our moderators, MMMNavy, where she asked people to list their safest foods. This might give you some ideas for future meals.

Hang in there.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 6/17/2010 11:17 AM (GMT -7)   
There is an excellent book I have called "Cooking Well for the Unwell" by Eileen Behan. It is out of print but used copies can be found on Amazon for about $4. She is a dietitian and she explains many of the types of diets that are helpful for us, low residue, clear liquid, full liquid. She also gives recipes and helpful tips on how to increase the calorie content so that the "patient" can gain weight. It might be a good resource tool for you. You are trying so hard and this might ease your mind a bit. I actually have 2 copies of it myself because I was always lending it out to friends and never had it when I wanted it for myself. It really is helpful for anyone who is cooking/caring for a sick person.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Jan 2010
Total Posts : 794
   Posted 6/17/2010 12:20 PM (GMT -7)   
Everyone is different regarding diet/triggers etc. Prior to my son's diagnosis I knew he was having tummy troubles and thought ok let's move onto all wholegrain/brown bread, rice pasta etc and get some veg down him(he not keen on veg :) ) After he ws referred and diagnosed I was told(by consultant) no wholemeal/brown and minimal fruit and veg (I think it has something to do with it sticking in the inflamed areas?).
Shortly after diagnosis he was put onto total enteral nutrition for 7 1/2 weeks which calmed things down and gave his digestive system a bit less to do and it also enabled him to get some vital nutrients that his body hadn't previously been able to absorb. Colour returned to his face which was nice but he only gained approx 2 1/2 lb. His starting weight was (I believe 96lb(43/44 kg)/height 5'5). We spent 3 weeks re-introducing solid food, now some 4 months later he continues to have his normal diet supplemented with a high calorie/nutrient liquid food(now 114 lb/51.70 kg) getting there ever so slowly but still needs at least another 7lb to be gained. We haven't found any obvious triggers in food and currently the dietician has said basically let him eat what he wants/when he wants (so basically he has some good stuff and then some absolute rubbish(but at least it packed with calories)

You are not his servant and should not be at his beck and call all of the time. Yes he needs support and encouragement and I am also sure that there will be times in the day that you may need to 'jolly' him along. In my case, son gets breakfast(nutritional drinks) and tablets in bed (he's not good in the mornings) but after that he is basically on his own and is treated like everyone else(I'd make a rubbish nurse ;) )
Honestly, tlc is greatfully appreciated when really needed but you are not doing him any favours by being at his beck and call.

I think you need to get the help of a dietician and give the enteral nutrition a go(it may not work miracles) but it certainly is not going to make him any worse than he is right now.

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 6/17/2010 12:21 PM (GMT -7)   
I agree with all the previous are very much on the right track...just a thought...I know when I am not doing so good, ANY fiber (including those in lentils, beans, brown rice) will feel I go back to the baby rice cereal, jello and pretty close to a liquid diet...when I start healing again, I can start out with a bit more complex foods such a fish, chicken, beans, lentils...I still have to stay away from fresh veggies (salad greens, etc.) and fresh fruits and popcorn...
Wishing you luck...
"The earth laughs in flowers"

Veteran Member

Date Joined Oct 2008
Total Posts : 1343
   Posted 6/17/2010 2:32 PM (GMT -7)   
I recommend reading "Breaking the Vicious Cycle" by Elaine Gotschall. It is about the Specific Carbohydrate Diet (SCD) and how it helps people with gut problems. Basically, you avoid gluten, lactose, sugar, and starch. It's really helped my crohn's a lot, and even healed my 3 fistulas. Some people think the diet is too restrictive, but personally, I don't find it so and enjoy the food. After 1.5 years, it's second nature to follow. You can find lots of info at,, and
35 years old, Crohn's disease for 15 of them
Resection of ileocecal valve on 09/22/09
Current Meds: LDN, Pentasa, Effexor XR
Supplements: 3 kinds of Fish Oil, Multi-Vitamin, Vitamin D, Calcium, CoQ10, Enzymes
SCD since 12/01/08 - eating Stage 3 foods

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 6/17/2010 3:12 PM (GMT -7)   
Easy, gentle, foods that a teen can prepare himself:

* fruit smoothies: try banana, peanut butter and milk / milk substitute, or (peeled?) pears in milk / milk substitute
* toast and banana; toast and peanut butter; toast and tinned fish (e.g. tuna)
* boiled or poached eggs
* salmon, trout or lean chicken - wrap in foil, bake in oven; eat. Minimal preparation; minimal washing up
* cous cous - cover with an equal amount of boiling water, allow to stand for several minutes; fluff with fork. Microwave for a little longer if it doesn't seem to be quite cooked.
* baked custards
* plain rice - perhaps try those microwavable portions you can buy in some supermarkets

I agree with Vixen that it is not healthy for either of you for you to be waiting on him hand and foot. Even if he is bedridden, there are little jobs that he may be able to do to help you, and this will be good for his self-esteem, and for your sanity.

All the very best to you,

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

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