comfort~sorry to hear you were hospitalized so long
I did have a temporary ileostomy for many years and have since had a proctocolectomy. My first ileo was due to a perforation and was reversed after 3 months but during those 3 months I a had a much better quality of life. Once I went back to my 'regular plumbing' my life slowly returned to pain and living in the bathroom. It was after about
a year that I went back to a temporary ileo and kept that for 8 years.
We are all different and respond to meds differently, too. For me, during those 8 years, medication greatly helped keep the perianal disease (I had strictures and fistulas) manageable but it did stop working at some point...that is when I decided to have a permanent ileo.
You may want to cross post this question on the ostomies forum...there are many posters who have been through this and can share their experiences!
Crohn’s dx 1989
some terrible years before my
Proctocolectomy in 2008