I am really new to this disease. Trying to learn all I can. I was only diagnosed May 25. I have also been dx with RA. I have not even started researching that one.
I have two "ulcers" one in the colon and one in the terminal ilium. The terminal ilium is what has caused the most pain since this started.
I am being really careful about food... eating "safe foods" experimenting a little here and there, but honestly a little afraid to over do.
I am weaning off Pred... at 15 MGs right now, taking Pentassa, and Bentyl. As well as a lot of supplementation ordered by GI and Rhuemie.
I am noticing the pain creeping back into the right side... Friday, a little,... today, a little more, definitely affecting my ability today to accomplish the things I want to do.
I am a proactive patient and will definitely call my GI on Monday to report, as I am supposed to wean down to 10 MG of pred tomorrow. The GI had told me her goal was NO PAIN. I don't take anything for pain currently, I don't think it warrants pain meds yet-- but it is creeping. No D-- No other symptoms.
Do you have "good days" and "bad days"...? I guess it depends on the individual, I was under the impression that once the "ulcers" healed, I would feel better, stick to a diet and I would be able to have more good days then bad?
Kim in FL
(Who had a lot planned today---- and is obviously not going to get it done.)