I have seriously had it with this flare. It's been ongoing since mid-April. Has gotten a little better, then will randomly degenerate back into the 'really bad' territory. I'm still on 10 mg of Prednisone, and have had 2 Remicade infusions, and it just refuses to GO AWAY.
I've been feeling pretty lousy the last week or two, and yesterday was just terrible....12 bathroom trips, and by the end was passing nothing but mucus with blood streaked through it. The pain was terrible. I have a spot in my left side that always hurts, and as I flare harder, it hurts more and more, to the point that I can't even LAY on that side. It's about halfway between my ribcage and hip, and it just hurts. Once it starts hurting badly enough, I know it's just a matter of time before I start seeing blood. ARGH. Had a lot of nausea yesterday from the pain as well, which just makes things even more fun. I was also running a low-grade fever all day (around 100).
I talked to my GI doctor's nurse practitioner today, and she talked to the doctor and they want to up my Prednisone back to 30 (ARGHHHH again) and give me 3 days' worth of an antibiotic called Alinia....she said it was like Flagyl, but not as hard on the stomach. We'll see, I guess. I am just beyond frustrated with all of this. :(
chronic active colitis/unspecified IBD - still awaiting a PillCam
Lialda 1.2 mg 2x/day
Prednisone 20 mg taper in progress
Remicade - 1 infusion so far
Darvocet or Lortab as needed for pain