So I'm basically the sickest I've ever been (minus fevers) even sicker than when I was diagnosed 8 years ago.
I just dont get my friends. I sent an email out trying to explain to them the severity of it and how it's been really lonely and I would appreciate people coming over. Some made plans to visit me and then "forgot" or never followed through. I just don't understand that some of these friends are the same ones that visited me all the time when I was in the hospital but what, just because I'm at home and trying to stay out of the hospital this time and not as sick or as lonely?
So I try to express my feelings. All I said was that I was dissapointed no one has visited me and the two I confronted blew up at me. Am I being unreasonable.
I tried going to a friend's birthday thing and people thought I was "upset" or "pissed" and not my normal smiley stuff. I wasn't pissed, I was just in pain and nausous and trying not to throw up on anyone. And now the friend whose birthday it was and who "forgot" about her plans to visit me today is telling me about how its hard to hang out with me because of my behavior.
...Doesnt friendship mean being friends with people when theyre up and down? I mean I know I'm known for being like the happy, peppy, smiley, giggly one but just because I'm not 100 percent people can't visit me? Of coure I'm a little blue, I'm in pain, can't eat, throwing up, have nadosum, throat sores, backpain, stomack pain, can barely walk since i have no nurtrients in me and ya know...i'm sick! i don't understand why people can't understand that!
I feel like i have a right to be dissapointed and express that to my friends. its not like im super angry and upset, just a little sad noone can come and visit me. apparently with chicks you cant tell them youre dissapointed or else it sounds like youre attacking them and yadah yadah yadah.
ugh, i just needed to vent since ya know, apparently i can't to my friend!
25 year old female, diagnosed with Crohn's in 2002 after being misdiagnosed with Lyme Disease for a year. Have been on Prednisone, Asacol, Entocort, and Remicade in the past.
Currently on 50 mg of Mercaptopurine and levothyroxine (50).
Trying to get on Humira but having insurance issues.. :(