Hi, I think Entocort has helped me a bunch. The GI dude put me on it ('member I'm only recently diagnosed) the end of April for a month. When I went in to see him for follow up he wrote a script out for 3 months and in reading these message boards I kinda freaked, called the office -he was out of town but chatted with his nurse. Not that he called me back re concerns but I tried to go off (sheepish face . . .cold turkey) Lasted about 3-4 days before the agony and massive issues resumed. So yes, it has helped me a bunch -took a full week for the weird mucous and massive D to go away. So, I am back to twice a day dosing and mulling over the next step, being good with calcium intake and hoping nothing else bad happens besides the hunger - that settled down after about 6 weeks when I stopped short of eating everything down to and including paint chips off of the wall.
We have pretty good insurance and so it didn't cost me a bundle but that can also be an issue. The drug is relatively new and pretty expensive but GI offices have coupons to help defray the out of pocket co-pays if you need it.
Its kinda interesting the mental gymnastics that one's mind can leap through. Cause I felt better was pretty convienced it was all either resolved or a mis-diagnosis. Ya know, one word out of 3 correct (irritable in the irritable bowel disease) diagnosis. Its interesting that some people that post on this web site have been on it for a couple of years -guess this would be better than regular big guns prednisone but still a bit freaky.
Take care, hope it helps. Wonder why your GI is reluctant, seems this drug helps control the big symptoms while supportive therapies can get started and built up to maintenance on something else. This GI dude did mention starting one of the TNF drugs but I was kinda nervous about starting big gun therapy and so he put me on Liadla -so my symptoms and pain are hugely better between the two. IDK -this all could make my ears bleed from too much thinking.
Best always, barb
Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin
When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson