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Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/4/2010 6:33 PM (GMT -7)   
Done so far:

* exercised
* dressed
* done dishes!!!!!!! wow! yeah turn shocked
* made bed
* taken fruit to friend
* dealt with tradesman

Still to do:

* meditate / pray
* try out new website
* do something fun for me
* errands????? Maybe???
* make stock etc

Have a good Monday, everyone.

A cold Ivy. smurf
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 7/4/2010 8:40 PM (GMT -7)   
What needs doing:

I need a holiday, but don't know how to get one.

Sorry Ivy, it doesn't sound very upbeat I'm afraid, Sorry....

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Veteran Member

Date Joined Apr 2006
Total Posts : 634
   Posted 7/4/2010 9:46 PM (GMT -7)   

* eat something healthy - one apple eaten

* sleep some more ( 3 and a half hours so far!)

* be awake, dressed and aware when men arrive to change our electricity and gas metres

* same as above for doctors appt at 5.50pm

* write list of stuff to go through with doctor

* eat plenty of food

* chase MRI appt

* maybe wander over to the shop to buy some crisps (to counteract the chocolate)

* do something fun for me and me alone (any suggestions???)

i hate pred, i have now been awake since 2.30am and its now 5.42am! Does anyone have any suggestions about sleeping tablets or anything?? I get about 3/4 hours per night then i usually cant have a nap either. Its driving me crazy!!
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 25mg prednisolone, calcium supplement,
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

Regular Member

Date Joined Aug 2008
Total Posts : 190
   Posted 7/4/2010 9:48 PM (GMT -7)   
I still need to go to bed! Almost 1AM here.
Feeling the best I have in several years! And it keeps getting better!

4mg LDN at bedtime, 500mg Pentasa 4x/day, 500mg Vitamin C, 1,000 I/U Vitamin D3, 1 Florastor 2x/day, 1 Nature's Way Primadophilus Reuteri at bed time.
Medication prior to taking LDN: 100 mg Imuran a day (GI wanted 150 mg), 1,000 mg of Pentasa 4x/day, 3 mg of Entocort 3x/day, Librax as needed.

Elite Member

Date Joined Jan 2010
Total Posts : 10096
   Posted 7/5/2010 6:08 AM (GMT -7)   
Congrats on the dishes, Ivy :p

I have a bit of a thing against dirty dishes, I have to say. I'm hopelessly ill-organised in other areas of my life, but I will deal with the washing up just because I can't stand the sight of a sinkful of dirty dishes. It's hard when you're eg a student and nobody else could care less about the state of the kitchen >_<

Monday's TLC

* Drive to the shops, get something for dinner
* Order this half price table before it stops being half price!
* Read for at least an hour; not doing a lot a today, so that's not too much to ask for
* Get to bed by 3am

The last one is an ongoing tlc. 3am is stupidly late by most people's standards, I know, but over the last few years I have let myself get into dreadful sleeping habits. Every time I've tried getting to bed earlier, I've tended to slip back but not this time. If ever I'm to rejoin the 'normal' world again I have to be able to get up in the mornings. I'll never be able to bounce out of bed chirpily at 7am, but I at least might be able to make a 9-11am appointment without being in a state of utter braindeadness.

Regular Member

Date Joined Jan 2010
Total Posts : 448
   Posted 7/5/2010 6:11 AM (GMT -7)   
In the Hospital :(
Cant do know TLC

Maybe see some Family

CT Scan showed so much delayed stomach emptying and GAS that I could of ruptured without a NG tube
Male, 22. Diagnosed with Crohn's officially since 2001.. Osteoporosis, Generalized Anxiety Disorder, Chronic Anemia.

Medications Used: Remicade, Humira, Cimzia, 6-mp, Pentasa, Flagyl, Prednisone, Zifaxan, Entocort,
TPN (Total Parenteral Nutrition), The whole nine.

Currently:, Entocort EC, Vitamin D, Fentanyl 12mcg / 72hrs, TPN, Cardizem
Currently On SSDI

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 7/5/2010 8:35 AM (GMT -7)   
Today I will be doing those last minute things before my surgery tomorrow:

1. Laundry
2. Go pick up some items left with a friend
3. Shower and shave the legs of course:)
4. Try to do something relaxing to take my mind off tomorrow.
5. Pack hospital bag I have put off for days.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Nov 2005
Total Posts : 1340
   Posted 7/6/2010 9:58 AM (GMT -7)   
I didn't see the Tuesday thread, but need a list today.

It's my first day on my own with both kids. Excited rather than worried because it's just sinking in how close we were to not bringing my son home. So:

breakfast and lunch for kids
folded laundry
all of us napped

to do --
eat a proper meal myself
do more laundry
put on makeup
nap #2
leave the house at least to the yard.
Mom to a healthy Pentasa baby and pregnant with #2. 5+ years remission, woo hoo!

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 7/6/2010 11:33 AM (GMT -7)   
TLC: not so much a relaxing day. The phone dude came today cause land line has been dead for about a week. Tested the outside and inside wires, couldn't figure out the problem until he went outside again and pulled the wire out as it enters the exterior of the house. Some dang mouse has chewed through the plastic coating. (I must be over feeding my dog . . .:)).

So, since I have been waiting this am for the phone dude have been massively cleaning and packing cause we are leaving this pm to get a kid off to camp. My spouse always feels the need to clean the car really well while I always feel the need to scrub all sorts of things . . .bathrooms, floors, laundry, windows -the dog has recently been avoiding me - he knows he would be next. Sooo needless to say my car is spic and span -better than when I take it to the detailers.

So my relaxation will occur when on the road . . .am taking my to do list of things I keep meaning to read but never have time to finish. First up is George Washington's Sacred Fire by Peter Lillbach, intermittently alternated with A Patriot's History by Schweikart & Allen. Fat books, have made it through the first 100ish pages but had to put them down this spring to finish up homework.

Plan: relax, hope to enjoy laying around by a camping pool (ya know, camping my style: running water, flushing toilets, minimal exposure to Lyme disease, soft fluffy pillows so thoughtfully provided by Marriott). Its rough sending a kid to camp . . .but somebody has to do it.

Hope your having a great day.

Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Veteran Member

Date Joined Sep 2009
Total Posts : 1143
   Posted 7/6/2010 2:25 PM (GMT -7)   
Had a bad time in the er about six weeks ago. The meds made me so dizzy I've been in bed since. This thread really helped keep my spirits up. Almost every day I read this thread and have started keeping my own version of tlc "things I've succeeded doing today." Sometimes it was just little like managing to stay out of bed for half an hour and walk around with a cane. Sometimes it was just managing to take a shower all by myself. This week my meds have been changed and the dizziness is almost gone. I am still at about 1/3 strength but it feels so much better. I got inspired to make a french intensive vegetable and fruit garden in a 4 ft by 12 ft space. The French use a different soil prep and planting method for small gardens. It is very labor intensive in the beginning because of the amount of soil prep. and amendment. I started doing only 30 minutes a day. Today I did 5 hours (with many breaks). Tomorrow I will be ready to plant all the herbs and vegetables. The bosc pear and fuji apple espaliere trees look beautiful and arrived with about 2 dozen 1" baby fruits. Thank you everyone for reminding me that sometimes just brushing your teeth can be an accomplishment to be proud of and to build on.

Post Edited (Subzeromambo) : 7/6/2010 3:29:32 PM (GMT-6)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/6/2010 3:10 PM (GMT -7)   
Wow, Subzeromambo. You're an inspiration.

What did you do to prep the soil?
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Sep 2009
Total Posts : 1143
   Posted 7/6/2010 9:18 PM (GMT -7)   
Thank you for your kind compliment and all the time you spend moderating. This site has really helped me through some tough times. The abscesses and fistula information was priceless.
As to my favorite folly:
I removed the top 12" of soil and set it aside. I then dug down another 2 feet (3 feet for the trees) and amended the horrible clay soil we have here with a mix of lime, sphagnum peat moss, composted hen manure, shellfish and old bark mulch. I used a 2 to 1 ratio of bad soil to amendments. I used a 4 to 1 ratio of soil to amendment for the remaining top 12" of soil. Thank god for steriods or I would never, ever have completed such a labor intensive crazy thing. All I used was a shovel. The trick was to only do a little bit at a time, take a break and go back many times over a couple of days. I found the directions in a Sunset Magazine article called French intensive gardening. Supposedly you can plant everything much closer together because the soil is prepped so deeply. I changed the design and choice of plants to include my favorite fruits, vegetables and herbs. The trees were specially grown and grafted for espalier. I just fell in love with them at the nursery even though they were really outside my budget. The garden area has a 6' x 12' wall on the back-side.
Tonight I am back to having very little energy and walking with a cane but it was totally worth it. It is the first thing I have really enjoyed doing in months.
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