Road trips and Crohns

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Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 7/5/2010 5:14 PM (GMT -7)   
I just got back from a road trip and let me tell you, thanks to this lovely disease I visited many more restrooms, rest areas, porta-potties, backsides of trees, etc., from pretty clean to approaching trainspotting, than I ever would've imagined before. I got to wondering what options there are, for when you can't find a place to go, or just get tired of going so much.

1. pants
2. diapers
3. bucket with bags
4. install camp toilet as car seat
5. butt bag or catheter (does such a thing exist?)
6. get an RV
7. load up on prednisone and hope you don't die in a road rage incident
Cimzia, Asacol

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 7/5/2010 5:19 PM (GMT -7)   
Wow,  that's good and timely as we are leaving on a road trip tomorrow.  It does kinda stress ya, I was thankful there were no cops around comin home from work last week . . . much less in the wild wild west.  M gonna be lookin for the golden arches tomorrow . . . .

Symptoms since Jan 2009, Dx UC vs crohns May 2010 but probably small bowel Crohn's dz, biopsies all "normal"

Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin

When the people fear their government, there is tyranny; when the government fears the people, there is liberty. Thomas Jefferson

Veteran Member

Date Joined Feb 2009
Total Posts : 1883
   Posted 7/5/2010 6:03 PM (GMT -7)   
I say install a toilet in the back seat of a van. I had a bad incident this week too. This time, mine was more cramps than diarrhea. Ugh! It was my own fault for eating a spicy lunch. Still, even at best, my stomach messes up when I travel. At one point I was having bad cramps and thought I'd have to crap in a garbage bag we happened to have in the car. Luckily, the urge passed. It's not easy in a car in a traffic jam with cramps. I am soooo glad I didn't have to do that as I know someone would have seen me.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, asthma/allergies, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, singulair, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, plaquenil back on cymbalta for pain, nexium for reflux, wellbutrin
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA
Collitis doing OK for now, it's fatigue and joint pain that are plagueing me right now!!!

Elite Member

Date Joined Feb 2004
Total Posts : 20577
   Posted 7/5/2010 7:37 PM (GMT -7)   
I sold my car and bought a mini van and put one of those camping port-o-potties in the back (I removed the very back bench seat, the front passenger and the 2 seats behind the fronts seats are all bucket seats so it's easy access for me to go from the front to the back and "do my thing" when necessary....I have to say that this has also relieved my extream anxiety that I used to have about leaving the's probably not good that I refuse to drive in a car anymore but who the hell cares, I get out of the house now and I'm not a total emotional wreck over it anymore and that's more important than the dependancy of travelling in my van only. When I'm cured of this crapty disease then I'll drive in a car again!
bee propolis caps 500mg one cap twice/day
omegas 369 caps one cap twice/day
probiotics 10 billion cfu once/day
vitamins C-calcium ascorbate (easy on the gut) and vitamin A each once/day
Prodiem fibre supplement one cap before bed
I've also altered my diet (no junky stuff at all, processed, fast-foods, refined sugars, ect) and exercise regularly.
I went from 30+ bloody BM's/day with lots of lower back pain to an average of 5/day no bleeding no back pain and completely formed stools, still have severe urgency issues.
~~~~~~~~My bum is broken....there's a big crack down the middle of it! LOL :)~~~~~~~~

ski bum
Regular Member

Date Joined Jan 2007
Total Posts : 451
   Posted 7/5/2010 7:56 PM (GMT -7)   
I'd like to manufacture a car seat with a secret compartment underneath. You slide back the top portion of the seat to reveal the compartment below. You can poop while you're driving and no one would know (unless there's an unfortunate passenger in the care who would have to suffer).
50 y/o F. CD dx'd Aug 05. Initially on Pentasa, then Imuran 125 mg. Started Humira (very reluctantly) on 10/24/07. Ileocolectomy 4/08. Back on Pentasa as maintenance.

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 7/5/2010 8:03 PM (GMT -7)   
Wouldn't people passing by notice your pants are pulled down? That's assuming you're not in a really tall vehicle. I drive a sedan and I know someone would pass me in traffic and see that I had no pants on even though I have pretty dark tinted windows....EEEK! Oh, and do you think you could poop and drive at the same time? I'm not sure I could...

Oooh, you could also put in one of those privacy shield things like in limos and just require your passengers be in the back seat at all times just in would still be unfortunate for them, but you'd have a little bit of privacy!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Regular Member

Date Joined Apr 2010
Total Posts : 76
   Posted 7/6/2010 7:23 AM (GMT -7)   
Feeling rough today but these posts really made me smile just picturing the scene ! Maybe there is a gap in the market - any inventors out there ?

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/6/2010 8:17 AM (GMT -7)   
I think pb4 has a really solid idea there.
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I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

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Make sure your suffering has meaning…

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 7/6/2010 11:30 AM (GMT -7)   
There's also those bathroom finder apps, which I forgot about. But I also don't have an iPhone. My GPS has rest areas which is nice and I paid attention to those "Next Rest Area in XX miles"! There were a couple of times when I thought about just swinging the door open and dropping trou right there in a parking lot and hope a cop wasn't around, but thankfully it didn't come to that.
Cimzia, Asacol

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