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Update from Nanners (updated)

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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 7/11/2010 9:05 AM (GMT -7)
Hi all!

Well surgery is over and I finally made it home late Friday night.  They were able to do the surgery via laproscope, but not so sure what difference it made as I am still in extreme pain.  I cannot walk upright yet, kinda walk around hunched over all the time.  I move really really slowly.  I am still on Dilaudid 2 mg every 3 hours in order to keep me reasonably comfortable.  I have had 3 prior laproscopic surgeries before, and NEVER have I been in this much pain.  My side and back are black and blue from where they inserted their tools.  Its still very hard to get up and down from either a sitting or lying position.  I think the bad pain is because they did it from a retroperitoneal approach (side and back) instead of the traditional abdominal approach.  They couldn't do the abdominal approach because of the multiple open abdominal surgeries I have had.  My side and back are black and blue and very swollen.

The good news though is that the type of cancer I had removed, will not reappear again, so I don't have to ever worry about having a repeat of this surgery.

When my bowels woke up it was much like when you have a resection then have the explosive diarrhea afterwards.  I still have to be VERY close to the bathroom at all times.  Why do these doctors never believe you when you say you have a very delicate system and that the meds ALWAYS mess you up?  I am currently re thinking on whether or not to go forward with my knee replacement.  I can't imagine having that explosive diarrhea and nausea/vomiting with a bum leg.  I am going to make an appt with the ortho doc to discuss these fears before I agree to going forward. 

I will only be around hit and miss for awhile.  I am still very weak, in alot of pain, and still need to sleep alot.  My wonderful husband is taking good care of me.  But I still have a lot of recuperating to do.  I will talk to all of you again soon.

Hugs

Gail*Nanners*

 

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mv4au
Regular Member
Joined : Jan 2010
Posts : 37
Posted 7/11/2010 9:41 AM (GMT -7)
Hope you get to feeling better soon! I will be praying for you :-)
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crohnielass
Veteran Member
Joined : Mar 2009
Posts : 1118
Posted 7/11/2010 11:17 AM (GMT -7)
A big gentle hug ((Nanners)) Glad the operation went well  and that your now home in the comfort of your own home to recover. sounds very painful what you have had done take it slowly and rest up I wouldn't even think about the knee op right now you have enough to deal with for a while. take care  Bev x   
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vixen
Veteran Member
Joined : Jan 2010
Posts : 794
Posted 7/11/2010 11:21 AM (GMT -7)
 

ouch!!!!

Glad to hear that the news is good, albeit you are suffering!!

Take one day at a time and concentrate on today and let the tomorrows take care of themselves

gentle ((((((hugs))))

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Becky77
Veteran Member
Joined : Dec 2005
Posts : 1768
Posted 7/11/2010 11:42 AM (GMT -7)
I'm glad the surgery is over for you, but so sorry to hear you're feeling so terrible after it. Hopefully you'll progress from here and feel better soon.

gentle (((hugs))) to you and well wishes.
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Pmkrier
Regular Member
Joined : Apr 2010
Posts : 69
Posted 7/11/2010 12:39 PM (GMT -7)
Get Better Soon!!!!
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grumpygi
Regular Member
Joined : May 2010
Posts : 266
Posted 7/11/2010 12:43 PM (GMT -7)
Naners: Thank God this is all over and you are on the mend. I am so thankful nothing more aggressive had to be done, am sorry that you are still in so much pain but it sounds like your docs have got you well covered and supported. Thanks for the update, glad you are on the mend and take care of yourself! Barb
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WriterMum
Regular Member
Joined : Apr 2009
Posts : 166
Posted 7/11/2010 12:51 PM (GMT -7)
I am so glad you are home, and that you have some wonderful help as you recover!

Now is not the time to even be thinking about it, but I think I wrote before that the knee surgery might not be that bad. My dad had his in November and recovered very easily. He is 70, and although he doesn't have IBD he does have sensitive bowels. We joke that the change of water from one town to the next upsets his stomach. It is probably IBS. However, he used pain medication for about 2 days and then he had been so accustomed to living with knee pain that the recovery pain was nothing much in comparison. Apparently moving around will be fine. It is the standing that will be hard at first.

Anyway, I'm just saying that you shouldn't worry about that now. You should relax and recover for a while. Get lots of rest.

Take care :-)
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junerainbow
Regular Member
Joined : Feb 2010
Posts : 406
Posted 7/11/2010 2:30 PM (GMT -7)
hugs to you .. sending you gentle hugs..
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CrohnieToo
Veteran Member
Joined : May 2003
Posts : 9448
Posted 7/11/2010 5:12 PM (GMT -7)
Oh, Nanners. Leave it to you to think of us. Thank you for letting us know the GOOD news about the cancer!!!! What wonderful news and load off your mind and ours. (((hugs)))
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huckleberry
Regular Member
Joined : Sep 2007
Posts : 338
Posted 7/11/2010 5:43 PM (GMT -7)
So glad you're home. Hope every day gets better and better. ((hugs))
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dunny2
Veteran Member
Joined : Jan 2007
Posts : 3200
Posted 7/11/2010 6:14 PM (GMT -7)
So pleased it's over, and the news was good, I'm sorry you're suffering my friend, but you know time is
a great healer. Rest and relax, you've been in my thoughts Gail, ((((gentle hugs)))))
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flowery
Regular Member
Joined : Jul 2008
Posts : 440
Posted 7/11/2010 8:33 PM (GMT -7)
Get better Nanners! You've been through so much. Perhaps they can delay your knee replacement surgery awhile until your good and recovered. I've had 13 surgery's and know that after each one... it takes me a little longer to come around. My last surgery I had I actually went through 2 bottles of pain killers which is alot for me. My Dr.'s just kept reminding me that it was o.k. and to sleep and relax. Usually, it takes me double the time to recover than most. I hope you just get better...sounds like they really jerked you around with your ribs n' stuff.

Good luck!

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sr5599
Veteran Member
Joined : Aug 2007
Posts : 1202
Posted 7/11/2010 8:39 PM (GMT -7)
I'm happy for you that you've made it through and got some good news. I hope you are feeling better quickly!
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Sniper
Veteran Member
Joined : Feb 2004
Posts : 6518
Posted 7/11/2010 8:45 PM (GMT -7)
Geeeez Nanners, so sorry you hurt so bad. Hopes and prayers for quick recovery and a gentle hug ((Nanners)). You need to discuss lots of things with your doc before you have knee replacement too. Motherinlaw had both knees replaced and she says it was the most painful thing she has every done . She is a tough one too so when she says something hurts I believe. Plus she found out after that she would not be able to knell again so when she has fallen she has had to scoot along until she can find something to pull herself up on . I have installed grab bars all over for her for that reason. I'm not saying dont do it , just find out all you can first. Take good care of yourself and feel better soon...
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gumby44
Veteran Member
Joined : Nov 2007
Posts : 4505
Posted 7/11/2010 8:48 PM (GMT -7)
I hope you are out of pain and feeling better soon!!!!
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nawlinscate
Veteran Member
Joined : Jan 2007
Posts : 656
Posted 7/11/2010 9:16 PM (GMT -7)
Oh, Nanners, I'm glad it's over--but I'm so sorry that you're in so much pain. Just know that our thoughts are with you and that everyone here sends you our love and appreciation, as well as our hopes that you'll be feeling much better tomorrow.
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mtgman
Veteran Member
Joined : Mar 2005
Posts : 1289
Posted 7/11/2010 9:20 PM (GMT -7)
thinking of you! hope you're back on your feet real soon!!!!
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jeanneac
Veteran Member
Joined : Feb 2009
Posts : 1930
Posted 7/11/2010 10:16 PM (GMT -7)
So good to hear from you again Nanners. Bless your heart. Sorry you are in so much pain!!!!!! Thoughts and prayers are with you for less pain and a speedy recovery!!! Hang in there!!! Glad you have a good hubby to help you. He sounds like a keeper.
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MikeB
Veteran Member
Joined : Mar 2006
Posts : 1169
Posted 7/12/2010 5:16 AM (GMT -7)
Glad the bad stuff is gone . . . take it easy and recover at your own pace!

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PV
Veteran Member
Joined : May 2006
Posts : 1177
Posted 7/12/2010 6:50 AM (GMT -7)
(((Hugs)))). Ouch. Sounds like you're hurting a lot, but hopefully you'll heal up and stop hurting soon. I'm glad the surgery itself went without complications. I wish you the speediest of recoveries.

Worry about the knee surgery after you've recovered from this one, don't think about it now. One step at a time.

Feel better soon.

PV
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11096
Posted 7/12/2010 6:03 PM (GMT -7)
Well, I'm very glad that the cancer is gone and won't ever come back! That at least is excellent news. Sorry that you're in so much pain, though. Hope you get better soon. Take care.
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DebbieCrohns
Regular Member
Joined : Nov 2005
Posts : 186
Posted 7/12/2010 8:24 PM (GMT -7)
Nanners,

Glad the surgery went well and you don't need any further treatment.  Sorry you're in so much pain and I hope you feel better real soon.

Debbie

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Zanne
Veteran Member
Joined : Apr 2005
Posts : 3763
Posted 7/13/2010 8:53 AM (GMT -7)
I'm doing my happy dance! I'm sorry you are in so much pain, but better to get it all out now than have to worry about things for months or years to come. Feel better soon.
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Nanners
Elite Member
Joined : Apr 2005
Posts : 14999
Posted 7/13/2010 12:59 PM (GMT -7)
Thanks everyone for your kind wishes. Still in alot of pain, so much so, that I thought I was going to have to go to the ER this morning. I didn't stay on schedule with my pain meds, and when I woke up I started throwing up. OMG I thought I would die from the pain it was so bad. But after 2 more doses of my pain meds I am feeling a little better. My husband thinks I was trying to wean off the Dilaudid too soon. So I will give it a couple of more days then try moving down to the Percoset.

I am just so surprised in how painful this surgery has been. I just want to see "some" improvement, and haven't just yet. It get frustrating after awhile, I am sure you guys understand. Talk to you all again soon.

Hugs
Gail*Nanners*
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