Entocort worked great for my daughter, keeping her disease under control with no serious side effects. She ended up in the hospital the first time she tried to taper off it, even though she had recently started the SCD diet...and it took longer for it to reach full effectiveness after the hospital stay.
So neither she nor we wanted to take any chances...so she stayed on it for at least three years. We think the SCD diet with the Entocort did the trick. After the third year, and with the help of diet and LDN, she was able to taper off Entocort.
It has been about 10 months since she stopped Entocort. Her eye doctor said her eye pressure test had a reading of 14. We found it tended to be higher while on Entocort (anywhere from 18 to the low 20s). So, maybe the reduction in eye pressure is a coincidence, but maybe not...
Daughter (22) Dx'd Crohn's 3/06. Misdiagnosed for two years, including by top pediatric Crohn's specialist as stress. No symptoms for the past three years. March '09 colonoscopy showed stricture gone but two spots of inflammation in TI. Used LDN to taper off Entocort last fall. (Was on Entocort since April 06.) Never had D. 4.5 mg LDN, SCD multivit, homemade yogurt, 2000IU vit D3, 1000 mg calcium, 27-54 mg iron, monthly B12 shots, daily oral B12 twice a day (one B complex, then later one B 500), 10mg zinc. SCD diet.