what's the "reaction"?

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kia c.
Regular Member

Date Joined Jun 2004
Total Posts : 111
   Posted 7/12/2010 7:34 AM (GMT -7)   
For those of you that have taken Humira (or Remicade ... or Cimzia) and had a "reaction" to it ... what was the "reaction"? 
I ask ... 'cause I've been taking Humira since February ... and I've noticed a couple of little things ... but I'm not sure they're related to the Humira.

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 7/12/2010 7:56 AM (GMT -7)   

Remicade reaction caused sudden spike in blood pressure & pulse, feeling like I was going to pass out, like my chest, neck and head were on fire, followed by an immediate urge for a BM. 

Humira and Cimzia both just cause an injection site reaction for me...a white whelp around the injection site.  I also get more frequent upper respiratory infections, but that is a side effect, not a reaction. 

Crohn's Disease, Acid Reflux/Gastritis, Hashimoto's Thyroiditis, Endometriosis, Arthritis, Depression/Anxiety.  Too many meds to list them all.  =) 

Regular Member

Date Joined Jun 2010
Total Posts : 113
   Posted 7/12/2010 8:43 AM (GMT -7)   
On humira at first I noticed a lot of random bruising but after a few months that effect seemed to go away. Also I swear my hair has been shedding like crazy.

Veteran Member

Date Joined Jan 2005
Total Posts : 1825
   Posted 7/12/2010 9:12 AM (GMT -7)   
Over time I built up antibodies to the Remicade. The biggest symptom was debilitating joint pain to the point I could barely walk or use my hands. Stopped the drug -- symptoms gone.

What are you experiencing?

Veteran Member

Date Joined Mar 2009
Total Posts : 1118
   Posted 7/12/2010 9:20 AM (GMT -7)   
With remicade my chest went tight, I couldn't breathe and felt really hot from my chest upwards pretty scary. Bevx
Diagnosed with crohns at 13 now 43
Still battling with Doc's to get me on maintenance Meds only taking
Lomotil, 20mg citalopram,VSL#3 at the moment.

“I may not be where I need to be but,
I thank God I’m not where I use to be “

Regular Member

Date Joined Apr 2010
Total Posts : 76
   Posted 7/12/2010 10:18 AM (GMT -7)   
I had first infusion of Remicade last week and my stomach has been 'unsettled' (was doing ok with the steriods) but I was very tired that
evening and had joint pain for a couple of days. Next infusion next week so it will be interesting to see if it was a 'one off'.

kia c.
Regular Member

Date Joined Jun 2004
Total Posts : 111
   Posted 7/12/2010 10:21 AM (GMT -7)   
Thanks for the responses.  Since starting the Humira in February, there's been a couple of things that I've notice ... but I question weather they're drug related ... so I'm just keeping them in the back of my mind;
I'm much more emotional than usual.  Three days after my second to last dose, I had a complete melt-down about something that shouldn't have bothered me.  Ranting and raving about my step-daughter moving 90 minutes away ... ranting and raving about her husband ... her kids ... my other step-daughter ... their guardian mother.  If it had something to do with my step-daughters I was all over it that night. 
My last dose of Humira was this past Thursday morning ... Friday night I passed out and threw-up.  With that said, I do have a history of passing out and being sick if I've hurt myself or if the Crohn's gets to be to much for me.  The doctors have said it's a case of vaso-vagul (sp?).  But this evening, I hadn't been sick with the Crohn's ... and I didn't hurt myself (like whacking my kneecap or anything).  BUT ... it has been 90+ degrees in Vermont this past week ... and I DON'T do well in the heat.  ???     
I don't think these two incidences are drug related ... but, like I said, I'm going to keep them in mind and mention it to the doctor next time I see him.
Again ... thanks for your responses!!
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