Yes, I had a not just a mesh rejection, which are most often benign, but an auto immune rejection of Polly Propolyne mesh.
I had mesh put in in 2002 and that went fine, took a while to settle down but by the 3 year mark I felt nothing, there was a minor defect but I could live with it. I notice while it was healing that both weight gain and increased activity would cause it to tear and repair, once I got to my normal activity and weight this settled.
In 2005 I had a reversal of my ostomy, so I got a new (different I am sure, by brand if not type) Polly Propolyne mesh put in and from the moment I woke up things did not feel right. It was hard to breath. A wound abscess showed up withing the first 3 weeks, I went home with it -- just had to get out of there!
The wound got worse, bigger, the infection could not be treated. The mesh became visible in the wound bed --4 months of hell later I was admitted back into hospital where I would stay the next 4 months (I finally got TPN).
The pain I felt was torture, worse than a crohn's attack in many ways, it literally felt like the mesh was slowly ripping out of me, or I was being eaten alive, both work.
I could not stand up straight, hell I couldn't stand for long for how sick I was and sitting was no better as my guts pushed on the mesh. As this was going on I developed a fistula that hurt too, in places no one wants pain.
Blood work showed that my immune system was involved in the rejection, as my proteins were dangerously low.
It took 4 procedures over that 4 months and the sacrifice of all my central abdominal muscles to get all that torture out of me.
I now live with a 4x 7 hernia (keep in mind I'm a slight woman) and only have my side abdominal muscles to work with. I wear a binder 24-7, which doesn't fit well, and my guts are all adhesion due to lack of muscle support. I cannot run, swim, sing, dance.. sigh.
It took 1 1/2 years to recover from that, getting my back strong was a hassle.
Due to the fistula becoming abscessed the docs are looking at ways to reconstruct my gut so I can get another ostomy (there's no place for one right now) I am quite frankly terrified of having any mesh put in me and am demanding insertion elsewhere in my body to test for tolerance. Ah another doctor.. fun fun.
That's my story of mesh,
Hope yours is not as bad, I really really do.
CD 24 years. Multiple surgeries in past 10 yrs. 4 year Illeostomy. Mesh rejection. Too close to death, twice. Large inscisional hernia. Perpetually underweight. Short bowel syndrom. Have used a variety of complementary medical therapies. Highly recommend Bowen Therapy as the best body work. Take me vites. Started Low Dose Naltrexone March 27, 2010. Got married for the only time 2008. Survive because of the love of good friends, and because I can. Happy to be alive. IBD needs more awareness and more voices willing to speak up. BE well.