It is hard for a doctor to measure what will help and what will harm a patient with this disease, because of what can happen with the big guns with this disease. I have to admit I think your caring about
your son is wonderful. But as we have all said crohns is incredibly individual disease. If your son can play golf and work, and be rather caviliar with taking his meds, then he really probably does not have that bad of case of crohns. But one also wants to feel normal, and that is ok too. You learn what you can and cannot do eventually, but sometimes it takes a hospital stay or a surgery to wake people up. Most people that age drink and golf at the same time so I am wondering if that might of contributed to his bad spell.
The reason why we harp on not missing meds is because crohns meds can take months to reach an effective level in the body, for me it is about
3 months. This is not take a tylenol and feel better in a couple of hours, this is take meds for months and hope you feel better in three months. Then it might not even work, but one really needs to give it months. In the meantime one is suffering alot. I went for years going between 30-40 times a day, because I had a hard time finding meds that worked for me. That is why crohns patients are so fanitical about
taking meds, is that it can take months to get better.
Unfortunately it might be his new normal, but there are things he can do to minimize his pain. Such as regularly take his meds, even if he feels pretty good. If he is on a oral med that is really not considered a big gun. Unfortunately this is a disease that can silently advance, and it is always a good idea to keep a regular eye on it. Keep in contact with your gi, like make sure that you have a GI that will call you back within 24 hours.
What does concern me that your son maybe heading for years of steriods if he is going on with just using pred, as his main crohns med. I always think a second, third, forth, fifth opinions is a good idea, when you have a chronic illness. Especially to get him off long term steriods. I was on 80 mg of pred for more then 3 years, and it does have health side effects.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…
Post Edited (MMMNAVY) : 7/21/2010 8:39:26 AM (GMT-6)