IBS diagnosis???

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Regular Member

Date Joined May 2010
Total Posts : 111
   Posted 7/22/2010 7:33 AM (GMT -7)   
I don't know if I am officially dxed as "IBS" but that's how my doc is proceeding. He keeps telling me that I may develop Crohns later (think he is trying to cover his you-know-what:))

Typically, over the last several years, I will have very acute episodes of cramping and diarrhea that typically last 3-4 hours, then get a respite for a few weeks until it happens again.

Starting with last Tuesday (coincidentally the morning of my GI appt) I have had cramps and either loose bowels, diarrhea or really gross looking white flecked stools (mucous?) every morning with the sole exception of the day after I downed 2 immodium b/c I had to go somewhere and needed this crap to stop. It has been like clockwork - about 2 hours after I wake up, it starts until I have anywhere from 1-3 BMs at which point the cramping subsides. I haven't changed anything, and I'm getting ready to start a course of Xifaxan as soon as I can get my butt to the pharmacy.

This is not typical for me. I am supposed to see my doc again in October and am supposed to keep track of my symptoms to see how they compare (pre and post-Xifaxan).

Is mucous worrisome at all? I am pretty positive that's what it is, but I am not going to examine my BMs unless absolutely necessary (i.e. doc's orders. :)) The mucous stuff started last friday. It seems to be the first BM of the morning that is all whitish looking. Not to be gross but it's all intermingled. My stool is not completely white.

Last night around dinner time, I also started to have, what I call, one of my "prickly" stomachaches. There is prickly pain all over my abdomen (mainly around my belly-button), but my abdomen is very tender in the LRQ - Like if I do something where I have to raise my right leg I actually say "ouch." I almost thought appendicitis, but it's pretty much gone this morning. And I tried the "press and release" test and the release didn't hurt as much as the press, so I figured it wasn't that. This is the third time I've had this SAME stomachache since March, when I started paying attention to everything with a little more vigilance.

By way of background I have had a c-scope (nothing), pillcam (nothing), EGD (esophagitis and gastritis). The Prometheus test predicted Crohns, for whatever that's worth.



Regular Member

Date Joined Feb 2010
Total Posts : 40
   Posted 7/23/2010 7:15 PM (GMT -7)   
I have had that whitish stuff always preceding a flare;  I don't know if it is mucous or pus...  Make sure you are not running a temp or getting chills, if you are, call the doctor.  Same thing if you get abdominal pain that doesn't go away.  When in doubt, call the GI! 

Regular Member

Date Joined May 2010
Total Posts : 115
   Posted 7/24/2010 6:49 AM (GMT -7)   
TBH I'm not sure. When I am unmedicated, I usually have 10-20 bm's a day. But I've had CD for well over 20 yrs and most of that time I've been undiagnosed. I'd assume if a pillcam didn't pick up any inflammation or ulceration then it is more likely to be IBS. When I had my scope, there was inflammation, ulceration and the biopsy showed granulomas which is distictive of CD.

What is your blood work like? Are you CRP and ESR elevated? Are you anaemic indicating possible blood loss in your bm's? These are all questions you need to ask your GI.

I wish you the best of luck and I hope you get some answers very soon.
39yr old Single Mum of 3 Girls living in Sydney, Australia. Diagnosed with Crohn's April 2009 after suffering for over 20 years.
Current meds: 6mp, Salofalk granules, somac, Vendolizumab clinical trial, mobic and panadol osteo.
Also dx with Spondyloarthritis of the sacroiliac joints and psoriasis.

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 7/24/2010 7:00 AM (GMT -7)   
Were biopsies taken when the scope was done?  The LRQ, along with D, does sound suspicious. What do the lab results (CRP, ESR) say?

Regular Member

Date Joined May 2010
Total Posts : 111
   Posted 7/25/2010 9:08 AM (GMT -7)   
@Claudine: I don't know the answers to those questions, as the only bloodwork my GI did was the IBD serology. My GP did some bloodwork - on my paperwork it says "general health panel" and then a test for h-pylori is all I can decipher. I don't know that the bloodwork for inflammation markers is considered "general" but I'm guessing that anemia would be checked? I know that at my papsmear appt which was after that, my hematocrit was 11 something, but I had been taking iron as I was totally zapped energy wise. To my knowledge I have never been checked for the inflammation markers. Thanks for the well-wishes, I'm on day 3 of the Xifaxan and it seems to be working. I had no cramping and diarrhea yesterday. No BMs actually. Today I had slight cramping but it was just like "oh i gotta go" type stuff and there was some mucous, but not as much.

@njmom: Yes, I had biopsies done with the EGD and the colonoscopy. Mild Chronic Gastritis from the biopsies, and I had esophagitis which he saw, but I can't tell if he biopsied that area. The report says "Antral, biopsy" so I don't know where those samples came from, but I know there were only two. He put me on omeprazole, but then told me to not worry about it b/c i have absolutely no reflux symptoms. The only thing the c-scope pathology report says is "Multiple lymphoid nodules are present," but I asked him about that and he said that was nothing really. So test-wise, I don't know what else he could do. He doesn't seem to think there is anything better than scopes. I'm guessing he's pretty much right.

Veteran Member

Date Joined May 2003
Total Posts : 9448
   Posted 7/25/2010 8:26 PM (GMT -7)   
It sounds like you need to request copies of all your test results and look them over yourself. Its easy for your doctor to be so blase about your results, he isn't the one enduring the symptoms.

The gastritis might be mild but chronic means its been around a while and is expected to continue being around and that eventually means scarring or ulcerations, etc. Esophagitis means inflammation in the esophagus and again, regardless how mild, if it hangs around long enough it causes scarring and more serious problems as well. Antral would refer to the lower esophagus and beginning of the stomach.

I don't quite understand lymphoid nodules present in a colonoscopy pathology report. I would want a clear explanation of that. Its your doctor's responsibility to explain such things so you do understand.

I get the impression your doctor is treating you like a wimpy, worry-wart woman, not so much a hypochondriac but rather a .... wimpy, worry-wart woman. I'd be inclined to look for another doctor who had a little more respect for me and my intelligence.
My computer says I need to upgrade my brain to be compatible with its new software.

Regular Member

Date Joined May 2010
Total Posts : 111
   Posted 7/26/2010 5:54 AM (GMT -7)   
Heh, I shouldn't have made him sound so bad.  I actually am starting to like him.  I have a hard time getting comfortable with a young, not bad-looking butt doc.  :)  I was just summing things up for the sake of brevity.  I asked him specifically about the lymphoid nodules, and he said that the area where the colon and small intestine come together is an area with a lot of lymph activity, and that is what that meant.  So when I said he said it was "nothing" I just meant that he basically said it was nothing out of the ordinary.  Although if that's the case, why did the pathologist bring it up...googling it didn't bring me any satisfaction either.
And as I am absolutely anal, I have all of my reports from my tests, not just their neat little form letters. 
I just thought it was strange that he didn't appear to have biopsied the esophagus, b/c nothing on the pathology report indicates that there were samples specifically from my esophagus.  Seems like if that were an area of inflammation he would have biopsied that.  I did forget to ask him specifically if he did.  But maybe he did.
I feel like if he thought I was simply a whiny, overly-concerned woman then he wouldn't have prescribed the Xifaxan. 

New Member

Date Joined Jun 2010
Total Posts : 11
   Posted 7/26/2010 6:28 AM (GMT -7)   
I do not really know about lymph activity, but if a pathologist picks up increased lymph activity - surely there should be concern, as anything with lymph involvement means (to me) the body is fighting something.
Also the fact that this increased lymph activity is right in the spot where small meets large bowel is concerning as (my understanding only again) is where Chrohns type lesions are often found
I would at least want to know how this is going to be monitored.
I hope you get some answers soon

Regular Member

Date Joined May 2010
Total Posts : 111
   Posted 7/26/2010 7:00 AM (GMT -7)   
That's what my un-medically educated self would seem to think as well.

When I google "crohns lymphoid nodules, " I find stuff like this online:

I found that interesting, but it was someone with obvious Crohn's disease.

Also this:

Less specific.

But if I just google "lymphoid nodules of colon" I get stuff like this

...Which makes it sound as if they are not a big deal. Although that article was from 1995. I don't see a whole lot of recent research turning up in my internet searches.

I posted about this on this forum and another crohn's forum a few weeks ago, and got no responses from anyone. Led me to believe it was not something anyone had heard of really.
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