Thank you for the info :) I'm just going to try not to worry about it for now.. I have already been on rifampin and clarithromycin for 2 months and no side effects except the rifampin makes my urine orange.. that's all.
Rifabutin was not an option- docs said we don't have that here and that rifampin was the equivalent?
And the Clofazimine was a BIG deal to get- everyone else I have heard from has gotten denied for this drug. From what I understand, it's an orphan drug only availabe overseas and you need special govt permission to order it, and have it specially approved, because it's not even approved for our country...
Right on the bottle it says experimental use only. But I still don't understand why people in the States are getting prescibed other antiboitics in it's stead. All the sucessful studies I have read include clofazimine. In fact, if I had ultimately gotten rejected for clofazimine, there was no "plan B" . There is no substitute for the clofazimine, I've been told, and it's the most important of the 3 in the anti-MAP plan.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.