last week, we had a scare. my boy got shakey, then pukey, then the D hit. our first thought... FLARE!!. nope. within a couple of days, he was back to normal, or normal for him. still up nine pounds from January, and still unmedicated. we forgot that he can get a bug and all that goes with it, just like anyone else. anything happens, we just circle the wagons and hover over him.
13 year old son diagnosed at 9,
one month of pred at beginning
2 years of immuran ineffective
SCD seemed to help(less pain gained 8 pounds in three months)