sr5599- I teared up, too, when they mentioned ostomy surgery, even though I had been told by my old gastro that it was in my future..
I have had an ostomy since last september and have mixed feelings about it. My stoma retracted and I still have to go to the washroom and all that comes out is mucous and blood (sorry tmi) BUT NO ONE ever told me this was a potential problem .. i wish I was more aware before hand.
I too have 2 fistulas, another suspected, tons of erythema nodosum and from crohn's colitis..
Take care :)
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.