hmm. But if you have an illiostomy you wouldn;t have to worry about your small intestine, would you? I thought they traditionally gave illi's to folks with small bowel crohn's ..so then in that case you might only hsve to worry about other manifestations like mouth ulcers etc.
What about pred? Or anti-MAP?
I feel for you, I also have it in my colon and have a colostomy. It never let my colon heal though they thought it would, now they are saying they want to make the colostomy permanent.. I don't want to. for one reason, my retracted stoma. UGH!
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.