still severely fatigued

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Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 7/25/2010 1:57 PM (GMT -7)   
I am at a loss as to why I am so fatigued all the time.  My blood levels are all in  the normal range, I use my B12 shot the 15th of every month and my Humira weekly.  A couple of months ago I had other symptoms that could have meant Mono so they tested me for Mono and Epstein Barr virus (that will read pos sometimes if the Mono is neg due to time in the body)  both came back negative.  The other symptoms went away back at the begining of June but the fatigue is aweful.  Any Ideas?
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 7/25/2010 2:31 PM (GMT -7)   
I am also tired, maybe not severely, but still if I look back over time I am more tired than I was last year and the year before....

I have spoken to my GI about this several times and the response I get is just that it is a function of the disease and age. Like you all my blood work is normal and I take my B12 on time. But still I don't want to feel like this. Some days I am fine and can carry on my daily life without too much trouble, other days not so much. I does seem to go hand in hand with how well I slept, not how much time I was in bed, but how deeply I slept.

I don't know how old you are, but about 10 years ago, so when I was about 35 I started taking B6. 200mg a day in 2 doses, 100mg in the morning and 100mg at night. After about a month, I didn't NEED a nap every day. I could still take a nap every day, but I didn't need it. Now 10 years later, its not as effective. I still notice if I stop taking it, but this is why I would suspect that maybe age is part of my problem. But at 45, I'm not ready to just accept that I am going to be tired all the time, especially since my husband is very active and we finally have the time and money to travel and do fun things! So if you find an answer please post it. In the meantime give B6 a try, it can't hurt and it might help.

CD 20 years officially, 30 unofficially. 3 resections '93, '95 '97
Managing with strict low residue diet, keeping symptoms to a minimum. All test show small amount of ulceration, still have occasional blockages. But still have a great time with my 2 daughters and husband!

Prednisone, 6MP,Prevacid, B12 shots, Bentyl, Xifaxan.....

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 7/25/2010 5:48 PM (GMT -7)   
I go through these periods of severe fatigue, and like you say, even when blood work looks
pretty good. I think it's the nature of the disease. BUT I know how you feel...

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Veteran Member

Date Joined Mar 2005
Total Posts : 1289
   Posted 7/25/2010 9:23 PM (GMT -7)   
my body gets very fatigued as well...sometimes it seems hard to walk up a flight of stairs- and i'm a pretty healthy (looking haha) 36 year old guy- 6-1 195 lbs...yet a flight of stairs looks like a mountain sometimes...i also tend to take a lot of naps and fall asleep for a while as soon as i get home from work...i take iron and am getitng my b-12 checked along with a binch of other tests next week- levels have always been fine though...
36 year old male living in AZ.  Diagnosed with Crohns at age of 15.
Currently on 30 mg prednisone.  still taking Asacol.  Just had 3rd Remicade infusion 3 weeks ago
In the middle of a bad flare now for over a year...lost almost 30 lbs. -- gained most of it back now.

Regular Member

Date Joined Mar 2008
Total Posts : 221
   Posted 7/26/2010 5:14 AM (GMT -7)   
I am tired ALL the time!!!!!! When I told my dr.. he put me on folic acid. Other than that, I haven't tried anything else.

I do work 4 days a week on my feet all day, so those are the days I get truly exhausted.
28y/o F, diagnosed with Crohn's Disease at 25 y/o , 2000 units of Vitamin D , 1500 Units of Calcium
60mg of 6-MP once daily since Feb. 2010

Veteran Member

Date Joined Jan 2003
Total Posts : 1152
   Posted 7/26/2010 9:25 AM (GMT -7)   
Could it be your meds?

Regular Member

Date Joined Jul 2008
Total Posts : 384
   Posted 7/26/2010 9:47 AM (GMT -7)   
I also deal with the fatigue, but I have noticed that it has become much more pronounced since I started the Humira. At this point I take it bi-weekly and the first week after I inject, I am physically exhausted. Not so much yawning tired, more I feel like I'm coming down with the flu tired. It's a whole body tired. It's not listed as a side effect, but I have read on here that several people who take Humira feel the same thing.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, calcium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!

Veteran Member

Date Joined May 2010
Total Posts : 8384
   Posted 7/26/2010 9:57 AM (GMT -7)   
Vitamin D?

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 7/26/2010 12:57 PM (GMT -7)   
All of my vitamin levels are normal all other blood results are normal as well. I have issues falling asleep and I am on a muscle relaxer for a pinched nerve but I only take that at bedtime and it only is in the system for 8 hours. I take Elavil to help prevent headaches from the Pentasa...I also take this at bedtime. This was occurring prior to these meds though...I take my shower when I first get up in the morning and that seems to even take all my energy.
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

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