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Regular Member

Date Joined Jan 2010
Total Posts : 257
   Posted 7/26/2010 1:32 PM (GMT -7)   
I went for a lovely small bowel follow through today - the good news is that it was fast because my bowels are so quick. Also I had to skip Pentasa for the test and the barium is out already (silver lining of Diarrhea). I am no radiologist but to me it looked like some really really obvious narrowing in one part (ileum). I am on nine pentasa pills per day and have a prescription for prednisone on hand if I need it. I am not feeling too bad lately, some D. but most of my days are going pretty okay (had fevers / joint pain etc more a few months ago before going back on Pentasa). I am scheduled to go on a cruise in 3 weeks (for seven days) out of the country. I purchased insurance, but the insurance of course won't cover pre-existing conditions that aren't stable. My GP and my specialist are both on holidays until September so I probably won't get any follow-up before I have to leave. I have never had a bowel obstruction or surgery. My fear is that I will be on the cruise and then something will happen and then I will owe tens of thousands of dollars. For those of you who have had Crohn's "emergencies" do I have a reason to worry or should I just calm down and go and enjoy that cruise?! If I start feeling badly can I survive a few days before getting back into the country?
Looking forward to your thoughts...
35 year old female
diagnosed 2003

Veteran Member

Date Joined May 2010
Total Posts : 8384
   Posted 7/26/2010 2:31 PM (GMT -7)   
Well, I think you should insist on having some kind of follow-up with the medical team before you leave. I'm not an expert on obstructions, but if you have narrowing that sounds like it could be scary. You could probably get by on your cruise with a liquid diet, or pureed food, or at least low residue, but isn't a lot of the fun of a cruise the awesome meals??

I had a small bowel follow thru a few years ago and I didn't even bother looking at the images. I've never been told I have any narrowing anywhere in the small bowel, but I did have a stricture in my esophagus a few years ago and that wasn't fun. I do believe that my ileum is narrower that normal - I can sometimes feel the stool piling up in my upper right quadrant. That's a nice feeling, LOL.

Good luck!

Regular Member

Date Joined May 2010
Total Posts : 266
   Posted 7/26/2010 10:49 PM (GMT -7)   
Hi, i'm so excited that you are going on a cruise!  i love cruising and go every year, the next one is in September.  Who cares where it goes any more -life on the high seas is perfect!  (ok, mostly . ..)
As for cruising - glad you have trip insurance and don't know your particulars regarding it but Travelex is usually who I use and they are A+ rated.  When I book the trip with my online travel dude I always tell him I need trip insurance.  If you purchase at the time of payment pre-existing diseases are covered.  The boat does have a medical team but they are rather expensive and everything goes on your sign and sail card  . . .which is of course attached to your credit card.  Where in the world are you going and what cruise line?  we usually book with RCI, have been on Carnival and Norwegian. 
In March the cruise boat knew somehow that I had trip insurance and during my first GI crisis the emergency service department called and set up a portfiolo - have only seen a few bills.  When I got home I submitted paperwork for my spouses hotel stays, food and rental car.  Really the first that I have ever had to do that but it was sure worth it. 
We are always very careful to eat in safe places if we are going to eat or drink anything off the boat.  Mostly don't in a lot of foreign ports.  You will know your own body and what you can and can't do and how much sun and fun you can tolerate.  We take big bubba kegs that keep water/ice cool and take powedered drink mix to use as needed. 
Have fun and happy sailing!!  Barb
Meds: Celebrex, Omeprazole, Liadla, Entocort EC 9mg/day, Vit D, Mulitvit, Omega 3's, Ambian, Neurontin.

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