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New Member

Date Joined Jul 2010
Total Posts : 1
   Posted 7/26/2010 2:29 PM (GMT -7)   
Does crohns cause weight gain? I've gained 75 pounds in one year! No kidding.... I've been diagnosed with this disease in 2005 thru a colonoscopy and follow up ones, multiple times, and hospitalized only once, but suffer terrible weight gain, tiredness, muscle spasms and of course much time in the bathroom. When do you know you are in remission? I didn't even know there was a time of remission for crohns.  I've been taking Pentasa, Carafate. But have been notified now of possible thyroid problems and diabetes. All weight gain related I'm guessing. how can I stop this weight gain?

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 7/26/2010 3:28 PM (GMT -7)   
It gets really frustrating and depressing.

I try to think in terms of health rather than a numerical weight, or my appearance. It doesn't always work and I get frustrated and self-conscious sometimes, but at least it's possible to work on health: weight can seem out of our control at times, especially once we factor an out-of-balance body and heavy medications into the mix.

Do you see a dietitian? That might help.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Regular Member

Date Joined Jul 2008
Total Posts : 82
   Posted 7/26/2010 5:47 PM (GMT -7)   
I don't have an answer for you, only to tell you you are not alone and it is terribly frustrating. I have had a form of an eating disorder since I was 16, I am not 36. I have never been so miserable. I don't feel there is anything that I can do to lose weight, no matter what I try. I don't understand why I can't eat without running to the bathroom, yet I can't lose weight for anything. Hang in there!
Diagnosed with Crohns in May 08
Resection in November 08
Currently on Humira, Entocort, Zoloft, Ritilan SR, B12 injections, Cytomel, Calcium and Vitamin D
Married, mother of 4 that works part time

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 7/26/2010 5:55 PM (GMT -7)   
I litterly doubled my body weight with crohn's I think there is a small subset of us that go into metabolic hording mode, and I also have thyriod problems that go along with worsing crohns.

Forum Co-moderator - Crohn's Disease/Thyroid Disorders:_All comments have the caveat contact your local health care provider.

I will find a way or make one. –Phillip Sidney 1554-1586

All that I am and all that I shall ever be, I owe to my Angel Mother.

The Bucket List- Have you found joy in your life?  Has your life brought joy to others?

Make sure your suffering has meaning…

Regular Member

Date Joined Oct 2007
Total Posts : 208
   Posted 7/26/2010 6:28 PM (GMT -7)   
Have your thyroid hormones checked: T3/T4. You are describing some symptoms of hypothyroidism. I have also had weight gain since my diagnosis almost 3 years ago, although mine isn't related to thyroid, alas.
Pentasa- 4 g q day; 1/08; Percocet
Remicade 1st infusion 7/24/08
Ultram ER 200mg; omeprazole 40mg; Xanax-ANXIETY; Effexor ER 150 mg
Hope this clears up soon, I want to start having babies!

Regular Member

Date Joined Dec 2007
Total Posts : 131
   Posted 7/29/2010 1:00 PM (GMT -7)   
I gained quite a bit of weight BACK with remi, which was a good thing. I'm not as young as I once was, and I think my metabolism has changed some. I try to keep busy with walking (I walk the golf course 2-3 times a week and try to walk more on top of that) and my weight has largely plateaued at what I consider my "normal" body weight. (170 up to 210 lbs since Remi 2 years ago. I'm 6'2".) Although I'd say I have more of a propensity for weight gain around the middle now, I am older and I think I absorb nutrients a lot better than I did before (Celiac disease diagnosed a few years prior to the Crohn's.) I think my body still responds well to exercise. I eat almost all organic and don't drink or eat "empty" calories. If I did, I think my weight would be more of a battle. I think people can really screw up their metabolisms trying to manipulate their diets too much. (Flavored water and a granola bar for lunch??; hardly sounds healthy, sorry.)
Starving your body MAKES it retain fat. If you are really lost with your weight and diet, tell your doc and set up a nutritionist appointment. Most weight loss places are in it for PROFIT first, outcomes second. Go to someone that is geared toward the latter.
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