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pyoderma gangrenosum

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>
Crohn's Disease
removing necrotic tissue without surgery/debridement
pyoderma gangrenosum sufferers - 33.3% - 1 votes
pyoderma gangrenosum treatment - 66.7% - 2 votes
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OriginalAreU2
Regular Member
Joined : May 2007
Posts : 89
Posted 7/26/2011 10:04 AM (GMT -7)
They told me that with PG it affects skin/ wounds healing.  So to risk taking a skin graft I could risk having 2 open wounds if it didnt heal properly.  Also with the immune system being poor that also plays a part.  With PG any poke or cut we get can turn into a PG wound.

I am glad you had success I haave been told this most likely will never heal.  The pain is off the charts, but things could always be worse  right? Lol

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19D43
New Member
Joined : Jul 2011
Posts : 4
Posted 7/26/2011 12:20 PM (GMT -7)
Thanks for the reply. I understand your concern and cautious approach. I'm fortunate to have been treated at Vanderbilt University Medical Center, one of the top 17 hospitals in the country. Very progressive and a real "brain bank". I think the key to my success with the graft was about a month of extremely diligent and meticulous wound care prior to the graft. I had the same two wound care techs that did it exactly the same way every day and it passed muster with my dermatologist and the plastic surgeon and I was very concerned about the whole thing, are they doing everything right? Well, so far so good. The donor site has heald very well. I was worried about trauma of any kind affecting some other place on my body, but have been lucky so far. I keep my fingers crossed that we have it under control. I know this is one of those diseases that has a mind of its own and could crop up at any time. I still have some small lesions that have appeared since the graft and they are very slow healing. We're watching them closely. I use clobetasol, azathioprine, doxycycline, gabbapentin, colcrys, prednisone and a boat load of OTC stuff. Am also a type II diabetic on insulin due to the prednisone.
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oncnurse1997
New Member
Joined : Sep 2011
Posts : 5
Posted 9/13/2011 5:49 PM (GMT -7)
19D43...I have been diagnosed with PG since May 2011 but they actually started Dec 2010. They have treated mine with clobetasol, multiple antibiotics (before the biopsy), topical aczone, dapsone, doxycycline and the derm thinks that there is most likely CD or UC as the underlying cause. I have my colonoscopy tomorrow so hopefully they can figure that out. I'm also being treated at Vanderbilt and just wondered which Derm you are seeing???
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19D43
New Member
Joined : Jul 2011
Posts : 4
Posted 9/13/2011 8:56 PM (GMT -7)
Sure am sorry you are having to go through all this too. What a pain!! We don't know what caused mine. Although I have been having autoimmune type stuff for several years before the PG. Also when I first went into the hospital they had me on the "antibiotic encyclopedia", sort of "lets try them all and see what works". The only problem with that is if something was working they didn't have a clue which one it was. That wasn't at Vandy. Two months in other facilities without a diagnosis and then by a fluke I ended up at Vandy and they had a diagnosis and treatment plan within a week. Wish I had gone there first. As far as the Derm Docs, I see Dr. Hennings and Dr. Strickland out at 100 Oaks. My Plastic Doc is Dr. Madden, great guy. Good luck with your colonoscopy, hope all goes well for you and they can find what is causing your PG.
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penelope-marie
Regular Member
Joined : Sep 2008
Posts : 54
Posted 9/14/2011 9:22 AM (GMT -7)
Steggy, did you know you can get Activon, which is medical grade Manuka honey? It's made by a British company called Advancis medical. I think you can get it on prescription here, I don't know about the US. The down side is you can't spread it on toast... 
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kmfdm
Regular Member
Joined : Jun 2008
Posts : 78
Posted 9/16/2011 1:44 AM (GMT -7)
I had Pyrodermal Gangranosial in my foot right after I was siagnosed with Crohns Disease.  I had to recieve corticosteroid shots into my foot where it started to create ulcerations.  The pain was so bad that I had to be belted down on the table as my Dermitologist inserted about 40 shots around the infected area.  I still have scars, but I do believe that P.G. can be caused by taking steroids, such as  Prednisone.
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