Prednisone and caffeine

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Lori M
Regular Member

Date Joined Aug 2010
Total Posts : 65
   Posted 8/7/2010 9:55 AM (GMT -7)   
Hey all,
I was just diagnosed with Crohn's last Tuesday, so I'm really new to this.  And I'm only on day 4 of my meds (prednisone and asacol).  But so far I'm feeling a lot better, the horrible inflammation pain in my shins and ankles is gone!  Still have some cramping and D a few minutes after I eat anything, but it's tolerable.  So yesterday I woke up feeling really good, and had myself a little cup of coffee.  Whoa!!!!  Guess I should have done a little more research on drug interractions!  I was speeding like a crazy woman.  Scrubbed the entire bathroom, mopped all the floors, washed my car and vacuumed the whole house.  I haven't done that much work since I got sick over 3 months ago!  It was nice to accomplish so much, but I sure felt weird.  Like I couldn't even make myself sit still for more than a few minutes.  And by about 8:00 I was so ready to crash.  So I guess this is the start of me knowing what I can and cannot tolerate! 
The adventure continues.....
46 years old. Diagnosed with Crohn's August 3, 2010
Started predinose on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/7/2010 10:06 AM (GMT -7)   
Hey Lori and welcome to Healingwells Crohns forum. Yeah Pred by itself can give you crazy energy then adding in caffiene look out. Most of us have some issues with caffiene. I can have a little, but too much can upset my stomach.

Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 8/7/2010 10:27 AM (GMT -7)   
Nanners is right, the Predisone will do that to you.  I felt that way for about 3 weeks after starting Prednisone.  I've went for days without sleep while I was on it.
Dianogsed with Crohns: At 16 years old. 23 years old now.
Surgeries:3 Bowel Resections, Gallbladder Removed, 3 Abscess Cleanings, Fistula Repair
Current Meds: Methorexate, Vitamin B12 (injections), Nexium.
Next Surgery: None.

Veteran Member

Date Joined May 2009
Total Posts : 703
   Posted 8/7/2010 11:12 AM (GMT -7)   
Can you come over to my house? ;)
Cimzia, Asacol

Lori M
Regular Member

Date Joined Aug 2010
Total Posts : 65
   Posted 8/7/2010 11:41 AM (GMT -7)   
Haha GDen! I'm only half kidding when I say that I was ready to go door to door to ask the neighbors what they needed done! I've heard so much about weight gain with Pred - wonder how that can happen when you're constantly moving!
46 years old. Diagnosed with Crohn's August 3, 2010
Started predinose on 8/4/10 for 4 weeks (40 mg 1st week, 30 mg 2nd week, 20 mg 3rd week and 10 mg final week)
Asacol 1200 mg 3 times a day

Regular Member

Date Joined Apr 2005
Total Posts : 362
   Posted 8/7/2010 4:53 PM (GMT -7)   
Ha ha I was also going to invite you over! Enjoy the energy with the pred becasue it's one of the only perks of it.. The only time in my life I recall having energy.. since my teens I'm usually more sluggish than a slug :(
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.

Regular Member

Date Joined Jul 2008
Total Posts : 384
   Posted 8/7/2010 7:36 PM (GMT -7)   
Hi Lori, welcome to HW! I get like that on Pred also. My whole house was clean constantly, and with 4 teenage boys, that was a miracle in itself! I cleaned closets I hadn't seen the back of in years, and I tackled hubby's garage which drove him nuts because of all the "do you really need this?" He complained for a month until he found where I had stashed all his odds and ends in his 'mancave'.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.

Humira, probiotic, a multivitamin, Glucosamine, D3, calcium, potassium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.

Life may not be the party we hoped for, but while we are here we might as well dance!
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