What exactly is remission?

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Regular Member

Date Joined Jul 2010
Total Posts : 23
   Posted 8/11/2010 10:34 AM (GMT -7)   
I'm new to this whole thing and am so looking forward to the day im in remission. I've read quite a few people on this site say they are in or have been in remission. I'm wondering what exactly that means. Does it mean you no longer have to take meds, no longer have pain because meds are working??
Hopefully someone can enlighten me :)
- t

Diagnosed with Crohn's in April 2010.
Currently on 3 grams of Pentasa 2x a day, trying to find diet and stress relief that works for me.

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 8/11/2010 10:48 AM (GMT -7)   
tes, clinically, remission just means a lack of symptoms.  Meds are still required to keep you in remission, you just don't have as many symptoms, as much pain, etc.  Many people still have some symptoms but they aren't as severe or frequent.  Some people may not have any symptoms...it's different for everyone and even differs from day to day for one person.  I've been in remission for 4 or 5 years but I still have the arthritis associated with Crohn's and it's in a major flare.  I've been having to take 5 or 6 Librax pills a day just for stomach spasms lately, but there have been periods where I went for weeks without having to take any Librax.  But, other than that, I have no gut symptoms and my tests all come back clear.  For a while, I was able to eat almost anything I wanted (but still stayed clear of a few items), but lately anything I eat gives me stomach spasms.  So, remission is great, but it doesn't mean that life goes back to pre-Crohn's normal.   

Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/11/2010 10:50 AM (GMT -7)   
Its a reduction of symptoms. And 100% NO, do not stop your meds, or else your remission ends. Crohns is a chronic and incurable disease and will continue to do its damage unless it is treated at all times. If the Pentasa is working, why fix it if it ain't broke? Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Regular Member

Date Joined Aug 2006
Total Posts : 443
   Posted 8/11/2010 11:47 AM (GMT -7)   
Clinical remission means no symptoms of Crohn's disease. Laboratory remission means bloodwork is normal (ESR, C-reactive protein, etc.). Sometimes people can be in clinical remission, but not laboratory remission, because the disease is still simmering at a low level. At times you may be in remission while not on any treatment, other times you may be in remission while taking one or another treatment. It's still remission.

Regular Member

Date Joined Jul 2010
Total Posts : 23
   Posted 8/11/2010 11:49 AM (GMT -7)   
I wouldn't dream of going off my meds, they have changed my life for the better.
I was just wondering if some day it was a possibility and to what extent I can expect symptoms to decrease. Seems like everything else with Crohn's there is no exact science.
- t

Diagnosed with Crohn's in April 2010.
Currently on 3 grams of Pentasa 2x a day, trying to find diet and stress relief that works for me.

Regular Member

Date Joined Jun 2010
Total Posts : 337
   Posted 8/11/2010 4:35 PM (GMT -7)   
Remission is completely dependent on the person it seems like. Some people have some symptoms while others have none. It's entirely dependent.

I spent 7 years in clinical/laboratory remission and lived a normal, active life. 12 - 16 hour days in grad school. Out drinking and dancing with friends on weekends. For a while in my health phase for about 2 years, I ran 3 miles 5 times a week. And ate salads and raw vegetables as a vegetarian nearly every day. I lived like a normal young 20 woman, while taking 75mg of Imuran and 750mg of Colazal 3x/day. My blood results came back normal everytime and on my colonoscopy, a bit of active inflammation was seen as my TI. But when deciding to up my meds to something stronger, decided not to rock the boat.

Crohn's became active again in my last year of grad school due to stress. Found out I have a fibrotic stricture on a CT scan while I thought I was still in remission (avoid the salads when you get there.). Flared up and trying to beat it into submission with Flagyl and more Imuran while I wait out the time to have a resection.

But that was just me...everyone is completely different.
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

75mg Imuran, 750mg Balsalazide 3x day, Tapering Pred (almost done).


Attempting SCD...fingers crossed!

Regular Member

Date Joined Apr 2005
Total Posts : 362
   Posted 8/11/2010 5:15 PM (GMT -7)   
I'm kind of wondering the same thing.. I mean, what if a person doesn't have much D but the 3 fistulas are still open and draining copious amounts of pus, and extremely painful. I also have red spots all over my body and at least 2 abcesses at any one time even though I'm on 3 antibiotics. Right now I have one big one on my girly parts and it hurts so bad to wipe.
Now even though the D isn't bad this sure doesn't feel like remission.
33 years old, dx with Crohn's in 1998. Currently on :
Clofazimine 100mg daily,
Rifampin 600mg daily, and Clarithromycin 2 tabs daily
and Cipralex 10mg/day for anxiety.
Hydroxyzine, percocet, Ativan as needed.
5g pharmaceutical grade Omega 3's, 1000IU's Vitamin D3 daily
2 Perianal fistulas, and 1 more suspected. Crohn's only at end of colon, cecum. Remi, Asacol, Salofalk, Imuran, Humira did nada. Built immunity to long-term Cipro use, which also induced panic attacks.
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