My son starts LDN this week... Any tips?

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Regular Member

Date Joined Jan 2010
Total Posts : 244
   Posted 8/13/2010 11:33 AM (GMT -7)   
 My boy is not in any pain, but every once in a while has a day of puking and Diarrhea. only once in a while though.
We found a Dr. in Edmonton that is willing to prescribe off label LDN. He wants to start slowly(.5mg to start, increasing by .5 every two weeks up to 3 mg) anyone know why the ramp up?
bob b
13 year old son diagnosed at 9,
one month of pred at beginning 
2 years of immuran ineffective
SCD seemed to help(less pain gained 8 pounds in three months)
considering Remicade

Rider Fan
Veteran Member

Date Joined May 2008
Total Posts : 1445
   Posted 8/13/2010 5:27 PM (GMT -7)   
Because he will have side effects once he starts and the dr wants to minimize them. Most people have sleep disturbances.
33 y/o male. Dx'ed in 1999. No surgeries.

Current meds: Humira 2/27/09. Proferrin iron pills.

Reduced gluten and dairy.

Go Saskatchewan Roughriders!

Regular Member

Date Joined Apr 2009
Total Posts : 384
   Posted 8/13/2010 9:35 PM (GMT -7)   
i think since he's on SCD too, he's going to get good results
Crohn's diagnosed 6/08
Organic SCD since 4/09
Remicade from 6/09 to 4/10
Low-dose naltrexone since 7/5/10
Boswellia + Natren's Healthy Trinity probiotic + Cinnamon + Wild Oregano Oil + vitamin D
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