Trying Imuran again/other treatment options

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Oct 2009
Total Posts : 157
   Posted 8/14/2010 11:31 AM (GMT -7)   
Well, I had my colonoscopy last Wednesday. My GI did see some active disease in my ileum, so she wants to start me on treatment ASAP, but wanted to wait for pathology to make any decisions. She gave me two options- 1. Long term entocort, like a year or longer. 2. Try Imuran again.

I really don't want to do long term entocort again. I'm still dealing with issues from being on it for over a year. I was very sensitive to it. I have horrible striae on my abdomen and legs, my moon face has JUST gone down from then, I have bone thinning and adrenal insufficiency that I'm still dealing with. This really isn't an option to me.

I'm willing to try Imuran again if it means not going on long term entocort. The last time I was on it, Imuran made me feel worse. I had joint pain, my first bloody stools, constant nausea, a bilateral kidney infection, easy bruising, low blood counts....I really didn't tolerate it well.

I was on Humira after Imuran, and it kicked my Crohn's disease in the butt and into remission. She thinks my disease isn't bad enough to warrant using Biologics (and I would like to avoid them as well).

Are there other options I could bring up to her? I feel like I'm in a little bit of a bind.
18 year old female
Crohn's dx in May 2009, symptoms since October 2008
Off every med while the doctors contemplate my diagnosis.
Been on: Entocort, Pentasa, Prednisone, Humira, Imuran

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 8/14/2010 5:23 PM (GMT -7)   

Becoming undone
Veteran Member

Date Joined Jul 2007
Total Posts : 927
   Posted 8/14/2010 7:58 PM (GMT -7)   
"The earth laughs in flowers"

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 8/15/2010 10:17 AM (GMT -7)   
I actually got really sick with Imuran, I had way too many side effects with it. But instead switched to 6mp and started taking it at bedtime, and I had no problems. Talk to your doc about 6mp. Its the same med as Imuran, but your body just breaks it down differently. Good luck!
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*
New Topic Post Reply Printable Version
Forum Information
Currently it is Wednesday, November 22, 2017 7:45 AM (GMT -7)
There are a total of 2,896,732 posts in 317,931 threads.
View Active Threads

Who's Online
This forum has 157524 registered members. Please welcome our newest member, jesbar.
407 Guest(s), 13 Registered Member(s) are currently online.  Details
Derwent, Grandmacow, alunke82, Lapis_29, BigMak, Jasperilla, Misalily, physedgirl09, White Bird, csantamaria, Steve n Dallas, straydog, iPoop

About Us | Advertise | Donate
Newsletter | Privacy Policy & Disclaimer
Follow on Facebook Follow on Twitter Follow on Pinterest
©1996-2017 LLC  All Rights Reserved.