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crohn's victim
New Member

Date Joined Aug 2010
Total Posts : 1
   Posted 8/16/2010 12:10 PM (GMT -7)   
I am a new member and have been suffering from Crohn's Disease for 15 years now. I have been in a flare for the entire time and the doctor's cannot find any medications that work. When I got Crohn's I also developed a hyper-coagulation disorder and that complicates things. I have had rectal abscesses in the past that were removed and drained, but I recently developed one and found out that I have a fistula. The surgeon placed a seton to aide in healing, but now I have a major problem. Is it possible for the seton to become dislodged and come out? I had gone to the bathroom and then hopped into the shower and could no longer feel it. I am a little worried and in tremendous pain to the point where it feels like I want to pass out. I am on a 6 hour pain killer regimen and they don't even touch it. Could I have pulled it loose and/or out when wiping? I have an appointment in the morning but was hoping to hear something to ease my mind in the meantime. eyes sad

Post Edited (crohn's victim) : 8/16/2010 1:22:43 PM (GMT-6)

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 8/16/2010 2:45 PM (GMT -7)   
It is possible for them just to fall out. I lost a seton that way, and can appreciate your distress. It's bad enough going through the placement, without them falling out soon afterwards.

I'm glad to hear you have an appointment tomorrow, or else I'd say "call your doctor, asap".

However, my feeling is that if you're in that much pain, you need to go down to the hospital now, even though you do have an appointment tomorrow.

Hang in there.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Regular Member

Date Joined Aug 2010
Total Posts : 129
   Posted 8/16/2010 4:47 PM (GMT -7)   
I don't know anything about that, but I wanted to tell you to STAY STRONG! I can't believe that you have to deal with all of this, but you are not alone and are probably an inspiration to many others!
Diagnosed with Crohn's disease March 2008. Battled a C. diff infection from Summer 2009-Spring 2010. Have been dealing with a severe flare for the past several weeks.
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