So, with the upcoming appt. my head is swirling with questions. And on top of it, I just read where they want me to take two enemas before my appt. I wonder what the heck he is going to do? I guess a short scope exam of maybe 6" or so? I think I had one of those many years ago when this first started.
I just feel like they really don't know what I have and I am going to the Mayo Clinic! They say it is diverticular colitis but I think I have crohn's or might be getting it. My blood test is positive (asca) high sed rate, I have joint pain, extreme fatigue & mouth sores. I asked my docs office for a surgery consult basically out of frustration because the enemas, colazal and flagyl have not completely gotten me into any real sort of remission. So far, my biopsies have just said inflammation. Then again, perhaps the diverticula pouches that I have need to come out. I just hope the surgeon looks at my case and discusses things with me. I am not too keen on having another physical exam down there. I want him to look at everything in my records and hope he does so. Ok, thanks for letting me vent!!
p.s I live an hour away, my apt is at 10. I guess I'll have to wake up at dawn b/c I usually get diarrhea in the morning anyway. Think I'll do just soups today to make things easier.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Currently on flagyl and it is helping. Have apt with surgeon soon