I guess these things are why they call it "practicing" medicine!!!
May, I had a clean scope 5 years ago after a CT scan said I had inflammation. Since they it always seems the CT scans show more inflammation than the scopes even though I've had inflammation show up on my scope in Jan 09. I am not a lot better either.
The surgeon at Mayo yesterday said he thought my positive ASCA was b/c of my other auto immune problems and that I have no evidence of UC or crohn's. I guess I can buy that about the ASCA test. I know they are positive in other auto immune disorders. But, gee, maybe all this crap is related????? It's funny that it all happened at one time. I also have skin scleroderma, btw.
He also told me he wasn't sure surgery could get rid of all my GI symptoms and that surgery would be totally up to me and elective. I was flabergasted that he worded it like that. What kind of doctor says that kind of junk? He hadn't even talked to my GI to make sure they have exhausted all treatments. That I can understand but he was very non-commital and beat around the bush pretty bad with me, which I don't appreciate. I'd rather someone just be up front and be honest with me, person to person.
It sounds like a few of us are pretty frustrated right now and with good reason.
MayOk, what are your symptoms in the lower GI? I was told I had IBS 20 years ago and while I think I have it, there is other stuff going on now. A lot of people get told they have IBS only for it to turn into IBD years later. I just think it is not a precise science.
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Currently on flagyl and it is helping. Have apt with surgeon soon