Still in limbo after surgery consult!!

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Veteran Member

Date Joined Feb 2009
Total Posts : 1883
   Posted 8/19/2010 4:35 PM (GMT -7)   
So the surgeon at Mayo basically didn't really give me a definitive answer today. He said he had no guarantee that the surgery would get rid of all my symptoms. He is going to talk to my GI to see what he has to say. But if a surgeon can't make some reasonable prediction of the success of the surgery, I am not going to let him cut on me!!!!! Talk about non-committal...... I like people to be straight and to the point, not beat around the bush. While I know there are few promises with surgery, a reasonable prediction would be nice. Have any of you been through anything like this with a surgeon? I feel so let down.

He did mention that there is always the possibility to explore more medicines with my GI. He is also going to consult with them about this and the GI folks will call me back.

Also, he mentioned the thickening in my bowel twice and not once mentioned the diverticulum.... What's up with that??? Huge sigh.......

In the meantime, my side still hurts!!!
d 1/09 with colitis sigmoid colon with some diverticular disease as well
IBS, high BP, fibromyalgia, Mixed Connective Tissue Disease
claritin, diovan, progesterone, VSL#3 probiotic, Vit. D, colazal, omeprazole for reflux.
Blood test positive for Crohn's via prometheus ibd serology panel ASCA
Positive ANA.
Currently on flagyl and it is helping. Have apt with surgeon soon

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 8/19/2010 8:28 PM (GMT -7)   
Would they even bother with the diverticulum if they're not really necessarily causing problems? Maybe they're more interested in taking out diseased bowel, and leaving the diverticulum since you can live with them...just my thought...

I'd be nervous if a surgeon couldn't promise things would be better, but honestly, they can't promise anything except that they'll take out what they see that's bad and put things back together after. I'd rely more on what my GI thinks about surgery, and what they think would happen after surgery based on your history. There's no telling after surgery what will happen when you have CD, but I would think a GI probably has more of a clue than a surgeon. It is frustrating though, you want a surgeon who is confident and can tell you he'll help you and get you feeling better, not one that's ho-hum about things.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!
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