second opinions

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Regular Member

Date Joined Aug 2009
Total Posts : 377
   Posted 8/23/2010 11:38 AM (GMT -7)   
This may sound like a stupid question, but considering there are only a handful of meds and surgery that the medical field uses for controlling Crohn's, what should I expect out of getting a second opinion? I love my GI as a doctor and person, but I cannot get my disease under control and it's really diminishing my quality of life.

I've had several people suggest I get a second opinion, so I set up an appointment at Barnes Jewish in St. Louis, which is where I was originally sent after the hospital in my hometown couldn't diagnose me. It is a teaching and research hospital, which I like, because you have many people on your case. However, I have a hard time trying to figure out how much more different of treatment they will suggest. I suppose I'm comparing it to having an issue that isn't a chronic disease, but with Crohn's there is no cure and they don't know what causes it, so should I really expect anything different?

Veteran Member

Date Joined Feb 2003
Total Posts : 1811
   Posted 8/23/2010 11:44 AM (GMT -7)   
A different doctor may see things in a way your current doctor doesn't. It's always worth a second opinion (or even a 3rd). That way you can see what your options really are. Good luck! I hope they can help you get this figured out!

Veteran Member

Date Joined Aug 2007
Total Posts : 884
   Posted 8/23/2010 1:10 PM (GMT -7)   
I'm asking my GI on Wednesday about going to Cleveland Clinic or somewhere for another opinion since my rheumy has exhausted all options that my GI will allow.  My first GI said he did every possible test twice and couldn't figure out that I had Crohn's, then I switched GIs and he did two tests that my first GI never did and dx'ed me right away.  So, there are things that some doctors think about that others don't and they may interpret results differently. 
Crohn's Disease with Arthritis, Non-Erosive Reflux Disease, Gastritis, Hashimoto's Thyroiditis, Endometriosis, Depression/Anxiety 

Regular Member

Date Joined Dec 2008
Total Posts : 115
   Posted 8/23/2010 2:39 PM (GMT -7)   
I'm doing the same exact thing as you are. I'm going to Beth Israel in Boston for a second opinion and perhaps a different perspective too. They're are a teaching/research hospital as well. My regular GI is talking a drug trial and I'm taking that to mean we have exhausted all options and I am NOT ready to hear that wink
35 mg Fosamax - weekly - OFF
15 mg Prednisone - daily - OFF
250 mg - Imuran - daily - OFF
20 mg - Prilosec - daily
First Remicade infusion - 10/14/09 - Hoping & praying for it to work...
Second Remicade infusion - 10/27/09 - working like a charm!
Remicade failed in 04/10
Humira in May/10 - semi remission achieved but I've got a feeling it's losing its zing already!
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