Okay, first yes I tell him everything and I hide nothing. The dr. has talked with him in the past so he should remember that. Next, I AM taking meds to better myself but I have to give the diflucan time to get the yeast out of my system so that the LDN can have a chance to work. I am also taking asacol as well. I also never let him know something last minute. I let him know days in advance sometimes so I'm not real sure where someone got that. I am trying to get better but maybe not the way some people think I should. I refuse to just lay down and do whatever the next GI tells me to do. I do not believe in biologics and I am trying everything before I have to go back on them! I cannot get a shingles vaccine b/c I have been on immunosuppressants in the past. Humira is known too cause shingles. So.....wouldn't it have been nice if someone would have told me to get the shingles vaccine before I ever took the very first immunosuppressant! But, no I "trusted" the doctors and look where that got me. And, I have been to a dr. just not the GI. I do have 2 dr's overseeing me right now. Not sure where you all are getting that I am not trying to be well. I have had this disease for over 17 years so I know how it works.
Thank you Nanners for the prayers.....very much appreciated!
Roni, yes I am still on the LDN and I have no problems with side effects. Either people on here don't see LDN as a medication suitable for Crohn's or they didn't see it on my signature. I am about 2 weeks away from being done with the difulcan and I thought just for a day or two that things were starting to turn around but last night it went back to the same old same old.
I appreciate the support.
36 y/o Female
Diagnosed with CD 1993
Currently taking Asacol, B-12, Folic Acid, Probiotic, Fish Oil, LDN
Past meds: Humira, Immuran, Robinul, Flagyl, Cipro, Prednisone, Bentyl,