First of all Welcome to Healingwell:)
Sounds like you been showered with umteen titles and dx. It's all very overwhelming!
Just a little introduction from me, I was dx with Crohns in 05' with a resection (18 inches) in 06 where they took out my ileum. It was scarred and pretty much tried to attach itself to another part of my intestines through a fistula...(spider web looking thing) It took a good 2 year flare and 45 pounds for the Dr.'s to figure out I had Crohns. I believe I've had issues off and on my whole life. I've had many many test and about 13 surgery's in my lifetime (not all Crohns related)...so....I'll see if I can answer some of your questions.
The upper GI tests that your going to have done..the barrium upper GI...isn't all that bad. You just have to drink chalky stuff and they wait and take pictures of it going through your small bowel. It's a really effective tests for finding out what is going on in the small intestines. It sorta lights it all up for them.... I've done the pill camera too. Pretty painless, you walk around with a back pack all day which is sapossed to record what the pill sees. Unfortunatley, my got caught for 5 days and then finally came out. My film was no good. Next time the GI said he would place it in my small bowel through an endoscopy. We'll see:) The small bowel is just a hard place to see so they do what they can.
I take Nexium also. I am disgusted by the price!!! ...but it's the ONLY one that works for me. I take 40mlgs and I can boost it to 80 if I want to. If I don't take it I get burning up my throat with in hours. Sometimes, I even asperate in my sleep...if I over eat...NOT GOOD! I spend many a night sleeping in a chair!
It is good you've taken out alcohol, candy, pop..and dairy. I would keep a diairy if I were you. Helps to look back and see what foods work and what ones didn't. I'd even try avoiding white wheat. I've found that it isn't good for me and heartburn. I know it doesn't leave alot of food left but there are some reciepes from people here if you look in the back posts.
The test where they put a tube down your nose...yea, that one isn't to comfortable! It helps if they spray some knumbing stuff first...just do what they say and it will go fast!
I really feel for what your going through especially with a new baby. If anything try to just calm yourself and nerves and the heartburn/Crohny symptoms should get better.
Easier said than done right?