I just heard back from my GI's office and I'm pretty ticked about this whole B12 thing... I've been talking to his office every two weeks about how I feel etc... I always tell them that I don't feel terrible, but I ALWAYS feel run down and am very fatigued. I have a sore throat every single day--not a horrible sore throat, but an annoying sore throat. Anyway, after my PCP jumped on my B12 levels immediately and started the injections the next day--I hear from my GI that my blood work was perfect and that my B12 was "borderline" low, but didn't mention anything about supplements or injections. IDIOT! My level was 206, which from everything I've read is pretty low. Anyway, when I mentioned the sore throat again, and mentioned that maybe it was the Imuran--she said that they have several patients on Imuran and have never heard of sore throat being a symptom. UGH. I just always feel like they think I'm being a big baby. I'm thinking it may be time to shop for a new GI... The other issue is my GI is very scope happy. Every time I have a complaint--he wants to do a colonoscopy. I agree it's a useful test, but I've had 3 in the past year and he wants to do another one in October.
If you have made it this far--thanks for listening to me vent. Grrrrr...
Crohn's Disease for 18 years.. 1st Resection June 2009 developed anastomostic leak and EC fistula. 2nd Resection, April 1, 2010-to fix leak and fistula-feeling fabulous now. Taking 100mg Imuran for maintenance.