I think I put all my eggs in one basket. I guess I just thought once I went on Humira everything would magically get better. It hasn't and I've even gotten worse. I've been on it for around 2 months now. The pain is worse, the symptoms are worse, the bathroom stuff, vomiting in the morning (sometime vomiting blood since many times theres really nothing in me to even throw up!) the achiness the extreme fatigue.
All I want to do is be able to work and have a decently normal life again, and I can barely do a part time job thats only a few hours...I come home exhausted. I've also been having fevers of around 102, 101, etc. The doc thinks it could be mono on top of the crohns which makes sense since im so tired and achey and thats how it was when i was first diagnosed...
I just don't know what to do. I haven't have a normal bm in forever....that's all i freaking want! And sometimes theres that ridiculous urgency which i have always been able to control but the other day i was driving to work and then i had to turn around because i thought i was going to freaking crap my pants! and i was a few minutes late to work and i mean 2 or 3 minutes isnt a big deal but if i had a teaching job (which is what im looking for before i got too sick) 2 or 3 minutes late would be a problem because u gotta get there before the kids!
im so tired and i want to be positive but basically its been awful since march...there's been a few okay moments but only because from when i was on steroids. but i just feel its not healthy to constantly go on and off steroids. (Im not on them now, my dr doesnt want to put me on them)
i just cant live like this. my crohns used to be so so manageable, i dont know what happened! yeah it sucked sometimes, but it wasnt such a huge presence in my life...it wasnt to the point where im staying home in bed everyday, havent seen my friends in weeks, cant work.
and the freaking guilt! i know im sick, i need to put my health first blablabla but i feel so darn guilty when i need to not work. i work for small places where theres no one else to cover you so basically youre screwing over someone.
i just dont know what else to try... my doc gave me 2 extra humira pens hoping if i did a shot every week for a month instead of every other week that maybe it will help. so tomorrow i'll take the first extra one, we'll see how it goes. (and last week out of nowhere i had major anxiety and couldn't even give myself the injection, i ended up misfiring, luckily i had a spare from my dr and i needed my stepdad to do it the 2nd time...what is with me? ive done it already! i should be able to do it!)
do people take something on top of the humira to help? can i try something else instead? or in addition to? is this really going to be my "life?" im just going to be a person in a bed with no life and no future? what can i do to make everything better?