For those who have had Drug Induced Lupus

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Regular Member

Date Joined Jul 2008
Total Posts : 97
   Posted 8/31/2010 10:38 AM (GMT -7)   
what were your symptoms? Did they come and go or once they started did it just keep getting worse?
Tannie 27 yrs Crossett,AR *Currently in Remission*
dx May 08 ,Just finished a 8 month round of pred in January 09. Remicade every 8 wks. 
Taken off 6-MP due to liver toxicity 09/08
Taken off of Asacol also 09/08

Regular Member

Date Joined Dec 2008
Total Posts : 115
   Posted 8/31/2010 12:09 PM (GMT -7)   
I started Humira back in May and developed the classic butterfly face rash and noticed it would disappear 10 days after the shot. Of course it reappeared 4 days later when I shot the next dose. It looked real bad a couple of weeks ago and I stopped it immediately. I have enough problems and don't need Lupus.

That was 2 1/2 weeks ago and I haven't seen the rash since.

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 8/31/2010 12:25 PM (GMT -7)   
My lupus appeared while I was taking Humira. After lots of blood work they decided that I have lupus, and
not the drug induced kind.... My symptoms were mostly fatigue and really, really bad joint pain, mainly in the
knees and wrists. However, now my symptoms have gone on to include generalized aching and problems with
my kidneys. Hope this helps!

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

Forum Moderator

Date Joined Nov 2003
Total Posts : 7122
   Posted 8/31/2010 12:49 PM (GMT -7)   
I developed antibodies [anti-dsDNA] found in lupus while on Remicade. I had some symptoms but none that would point to it be DILE because they were also symptoms found in my disease. Remicade stopped working and I switched to Humira. Within 2 months I had full-blown DILE. I had a fever of 100-100.9 everyday for 4 months. My red blood cell levels that had always been borderline low became very low. I had incredible fatigue. I could not walk the length of my house [50 feet] without resting for a half hour following. I had visibly inflamed and swollen joints that had not been previously involved in my disease process. I developed a rash on skin exposed to the sun light. My ANA turned positive and the level of anti-dsDNA antibodies skyrocketed. I developed mouth sores that would not heal and were so painful it compromised my ability to eat.

I was put on Prednisone and Plaquenil. After 6 weeks, the prednisone was stopped. I remained on the Plaquenil for another year. At that time, all the symptoms subsided, the ANA was normal and there were no longer any anti-dsDNA antibodies. My rheumy feels this was definitely DILE, not lupus outright.
Moderator Crohn's disease and Irritable Bowel Forums

CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, peripheral artery disease, pulmonary hypertension, degenerative disc disease, asthma, severe allergy and a host of other medical problems.

Regular Member

Date Joined Oct 2009
Total Posts : 22
   Posted 9/7/2010 6:42 PM (GMT -7)   
I am in the process of being tested for this right now too. Is this a possible side effect from the TNF Blockers?? I was on Remicaide for a few years before it stopped working, then I was on Humira for about a year until it caused MS like symptoms. I recently started Cimzia and I broke out with a terrible rash, extreme fatigue, joint pain, swollen lymph nodes, headaches, mouth sores, etc. I had a bioposy done and it came back for possible Lupus. I had several blood tests done last week to see if it is definitely Lupus or medicine induced Lupus and I go back for the results tomorrow. The thing is, my mother has Lupus and was pregnant with me when she found out she had it. So if it is Lupus, I am not sure if it is true lupus or medicine induced. Needless to say, I will not be taking the Cimzia anymore, I have had it with all of the side effects I get from it!

Any one experience Lupus syptoms from any of the meds? I'd like to hear anyone elses experiences with it!
Crohn's since 2000 / Lyme Disease 2009
Currently on: Prednisone (30 Mg), Cimzia & Bentyl 
Previously was on: Pentasa, Asacol, Flagyl, Remicaide, Humira, Entocourt
Hospitalized more times than I can count... I could probably glow in the dark if you turn off the lights from all the tests!!!!!!!
New Topic Post Reply Printable Version
Forum Information
Currently it is Tuesday, January 23, 2018 8:51 PM (GMT -7)
There are a total of 2,920,849 posts in 320,485 threads.
View Active Threads

Who's Online
This forum has 159505 registered members. Please welcome our newest member, lansellion.
458 Guest(s), 11 Registered Member(s) are currently online.  Details
Dr_Larsson, doors12, The Dude Abides, AJMan, Serfr, InTheShop, Connor77, MK1965, Aerose91, Robertmp, Loomie