height and CD?

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Veteran Member

Date Joined Jan 2003
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   Posted 9/1/2010 3:00 AM (GMT -7)   
ok in the CCFA money begging letter i got today it said there was a study of people being affected by early CD that were short, due to factors such as steroid use, malnutrition etc.. even if you did not have early symptoms. so my question is how tall are we as a group   me im 5"7" and 7/8ths... tongue

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Date Joined Dec 2005
Total Posts : 1768
   Posted 9/1/2010 3:05 AM (GMT -7)   
I'm 5'6 1/2". I'm female, so I'm average height. I didn't start having crohn's symptoms until about 18, so I was fully grown (at least in height).

Interesting that they are looking at height. Unless you have symptom, are malnourished, and/or are on steroids before puberty, I wouldn't think it would really make a difference in height....my opinion anyway.

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

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Date Joined Jan 2010
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   Posted 9/1/2010 3:21 AM (GMT -7)   
Son 5'5(and 1cm ;) )Been told all his growing done :( Undiagnosed/severlyunderweight/malnourished throughout his growing phase.

potty pooper
Regular Member

Date Joined Dec 2006
Total Posts : 375
   Posted 9/1/2010 3:44 AM (GMT -7)   
I'm female, 5'8". Surprising because I've had this illness since childhood but still had no delays in height, although I was always underweight and still am at the age of 64. The difference is now most people are jealous of my "beautiful shape" (their words). When I was a child I was teased and called Olive Oil because I was so skinny. (For those of you who might be too young to know who that is, google Popeyes girlfriend). Shed many a tear over that.

Regular Member

Date Joined Jun 2010
Total Posts : 337
   Posted 9/1/2010 4:24 AM (GMT -7)   
I'm female and 5'5. Was diagnosed with Crohn's when I was 18 and had symptoms for more then a year before hand. So all of my growing was done before I got diagnosed.

Though I've always been overweight until I got diagnosed. Then I was underweight, diagnosed and gained a lot of it back. And for the past 5 years or so, I've been 1 pound overweight and my doctor's nurses used to harass me about it. So I spent 6 months trying to lose it...started to flare and BAM, 10 pounds lighter. Haha.
Diagnosed 2002 at 18. Remission for about 7 years. Getting back into the swing of things at 26.

100mg Imuran, 750mg Balsalazide 3x day, Flagyl (death pills. yuck)


Had to abandon SCD...for now.

Elite Member

Date Joined Jan 2010
Total Posts : 10081
   Posted 9/1/2010 5:11 AM (GMT -7)   
No symptoms/diagnosis until mid 20s, but am a shortarse anyway: 5'0" ;_;

Veteran Member

Date Joined Feb 2004
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   Posted 9/1/2010 5:36 AM (GMT -7)   
I fall into the height challenged category as well. 5-8 ,,, but I think I'm shrinking .
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Veteran Member

Date Joined Apr 2006
Total Posts : 634
   Posted 9/1/2010 5:52 AM (GMT -7)   
i'm 5ft 8 and was diagnosed at 19. I was the perfect weight for my height before i was daignosed, now i'm barely tipping the scales at 55kgs
Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
No crohns' surgeries to date, Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab
Was at uni, but have paused the course to try to figure out my health!

Regular Member

Date Joined Jun 2009
Total Posts : 46
   Posted 9/1/2010 6:34 AM (GMT -7)   
I am 22 years old my height is 5'1 and I weigh 100 pounds

Veteran Member

Date Joined Jul 2006
Total Posts : 6927
   Posted 9/1/2010 7:26 AM (GMT -7)   
I started adulthood at six feet, but in a little more then decade I have lost about an inch and a half.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
I will find a way or make one. –Phillip Sidney 1554-1586
All that I am and all that I shall ever be, I owe to my Angel Mother.
The Bucket List- Have you found joy in your life? Has your life brought joy to others?
Make sure your suffering has meaning…

Elite Member

Date Joined Apr 2005
Total Posts : 14995
   Posted 9/1/2010 7:27 AM (GMT -7)   
I too was diagnosed at 18 and think I had already quit growing too. I am 5'5" tall. I did start smoking at 13, and am the shortest in my family.
Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Veteran Member

Date Joined Feb 2004
Total Posts : 6518
   Posted 9/1/2010 9:36 AM (GMT -7)   
There may be another explanation though. I was told that sex would stunt my growth. I wont say who told me ...Or at what age ...
If we would read the secret history of our enemies,we would find in each mans life sorrow and suffering enough to disarm all hostility.

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 9/1/2010 10:15 AM (GMT -7)   
I'm female and 5'7". I was diagnosed when I was 20, but had symptoms for a few years before that. I'm 39 now.
Crohn's Disease for 18 years.. 1st Resection June 2009 developed anastomostic leak and EC fistula. 2nd Resection, April 1, 2010-to fix leak and fistula-feeling fabulous now.  Taking 100mg Imuran for maintenance. 

Veteran Member

Date Joined Jan 2007
Total Posts : 3200
   Posted 9/1/2010 10:42 AM (GMT -7)   
Just 5' 0", only just...

Too many years with CD
Two bowel resections, several obstructions.
Fibromyalgia and recently diagnosed with chronic pancreatitis and lupus.
B12 Shots bi-weekly

Laughter is the brush that sweeps the cobwebs from our hearts...

artist guy
Veteran Member

Date Joined Jan 2010
Total Posts : 1373
   Posted 9/1/2010 11:33 AM (GMT -7)   
coincidence, I'm 5'3" 1/2. male old 60

Veteran Member

Date Joined Jul 2008
Total Posts : 674
   Posted 9/1/2010 11:48 AM (GMT -7)   
5'4 female.  Diagnosed at 16, but I was sick for yrs before that.

Regular Member

Date Joined Jul 2008
Total Posts : 384
   Posted 9/1/2010 11:58 AM (GMT -7)   
5'6. Dx'd at 14 but started having symptoms I think around 12. Was on and off pred throughout my teenage years.
My Dr's thought I should be around 5'8. I always assumed it was the pred.

Veteran Member

Date Joined Sep 2006
Total Posts : 2527
   Posted 9/1/2010 12:28 PM (GMT -7)   
I am 4'10" was diagnosed when I was 8 years old. It doesnt help that my parents are both short as wwll though add up the 2 factors and I was just screwed for height ever
Dx with Crohn's 1987, symptoms as early as 1984.
Temp iliostomy February 2007, reversed June 2007, Ovarian cysts, migraines, allergies (incl food allergies) , oral allergy syndrome (diff than true food allergies), Asthma, Gall Bladder removed 1999, Inguenal hernia 1987

Regular Member

Date Joined May 2010
Total Posts : 88
   Posted 9/1/2010 1:17 PM (GMT -7)   
I am 5'3 1/2. Crohns started around age 12 or 13. My mother is 5' and her crohns started at age 13. My dad is 5'7 and doesn't have crohns.
26 years old.
Diagnosed 11/06, suffered for 9 years undiagnosed.
large family history of Crohns. resection surgury 3/07.
currently on 1000 mgs Pentasa 4xd
also have horrible anxiety & constant sinus infections.
 -- imagination is stronger than knowledge -- myth is more potent than history -- dreams are more powerful than facts -- hope always triumphs over experience -- laughter is the cure for grief -- love is stronger than death --

Regular Member

Date Joined Aug 2010
Total Posts : 105
   Posted 9/1/2010 1:17 PM (GMT -7)   
I've had severe Crohns since I was 9 years old. 22 y/o male now and I've gotten to be 5'11. Somehow I've gotten this tall, I probably would've been a lot bigger had I not gotten the surgeries/prednisone when I was younger.

Regular Member

Date Joined Jun 2010
Total Posts : 113
   Posted 9/1/2010 1:21 PM (GMT -7)   
I've always been very short, I'm 5'0" now and 28 years old.

Veteran Member

Date Joined Apr 2005
Total Posts : 3763
   Posted 9/1/2010 1:26 PM (GMT -7)   
I'm 5' and 1/2 inch. I haven't lost anything in height yet despite all the compression fractures. My pediatrician was watching me all my life for growth. If I didn't grow at least 1/4 inch each year he threatened growth hormones. I always managed to just make it. All this and I wasn't diagnosed until I was 23. I'm sure there was some underlying disease going on for years.

Veteran Member

Date Joined May 2009
Total Posts : 506
   Posted 9/1/2010 1:33 PM (GMT -7)   
5'6" male, before Crohn's I'd always attributed my lack of height to Ritalin, but it's probably both factors.
Diagnosed with CD July 2007
Currently on Remicade, acidophilus, multivitamin.
Resection December 2009

Amor fati - Nietzsche

Regular Member

Date Joined Jul 2008
Total Posts : 440
   Posted 9/1/2010 3:07 PM (GMT -7)   

I'm 5'6 1/2...was dx at 36 years old. Had symptoms for many years prior to dx. My siblings are 6'4 boy and two sisters at 5'11...so I am the short one!?!

Veteran Member

Date Joined Apr 2006
Total Posts : 1885
   Posted 9/1/2010 3:38 PM (GMT -7)   
Daughter 5'9", symptoms since age 16, Dx aged 18.
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