sickofitall-leg pain

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Regular Member

Date Joined Sep 2009
Total Posts : 63
   Posted 9/2/2010 5:11 PM (GMT -7)   
I too have leg pain.  Sometimes they just ache all over and sometimes certain spots have intense pain like my ankles.  It is not too bad during the day, but it wakes me up at night.  I take Humira and my dr. does not think it is the Humira.   Could it be restless leg syndrome or is it crohns related? I wish I had the answers too.                                       

Regular Member

Date Joined May 2009
Total Posts : 251
   Posted 9/2/2010 5:20 PM (GMT -7)   
Thank you for thinking of me....Mine is from my hips to my toes. I get charlie horses, joint pain, twitching, shooting pain, and overall soreness. Not all at one time, but migrating back and forth between legs and never above my hips. They just don't know. I've been everywhere, tested for most everything. But its weird they never did an MRI or CT scan, just an Xray and EMGs. I will be fine one minute and then fall to the ground the next, screaming in pain. Its the weirdest thing ever. I think I'm gonna end up in a straight jacket soon if they don't figure this out. Bc I don't want to live like this anymore. I am not a depressed person, but enough is enough, and this aint livin. Just gotta keep the strength to keep pressing the drs. I use to be positive about this, but after a year and half it doesn't look like it will be resolved. I've tried neurontin, lyrica, cymbalta, everything that treats generalized pain, and it doesn't even touch it. The only thing that does is hard narcotics, which makes me look like an addict. I would rather die than be a drug addict. All I want is to be normal.... I'll deal with the crohns, but now I cant even drive for fear that I might not be able to hit the breaks in the middle of an attack. THe good thing is it is mostly at night, so I can work all day, but then go straight to sleep for fear of the attacks.
Current meds:  Remicade
Tried:  Prednisone, sulfasalzine, lialda, antibiotics, imuran
29 yr old female w/ crohn's colitis and SEVERE leg pain

Regular Member

Date Joined Jun 2006
Total Posts : 229
   Posted 9/3/2010 7:19 AM (GMT -7)   
Sickofitall- Do you do B12 injections, or have you had your levels checked? I ask because I recently had my levels checked because of leg pain and tingling in my feet and ankles. My levels were low and now I'm doing injections. The leg pain is slightly better after the first injection. I'm hopeful that it continues to improve with the extra B12.
Crohn's Disease for 18 years.. 1st Resection June 2009 developed anastomostic leak and EC fistula. 2nd Resection, April 1, 2010-to fix leak and fistula-feeling fabulous now.  Taking 100mg Imuran for maintenance. 
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