Dagger & randynoguts: Im not surprised, it doesnt make me happy to hear that, but i expected it because I know that what works for one person wont necessarily work for all people.
I never came on here claiming to have "the answer", if I knew all that was needed, well I dont know what I would do. I came on here to talk about
what Ive been through, this has just been an account of what I have been through and hasnt been about
getting anyone to do anything.
I am aware of the alternative possibilities to what I think worked for me, the way I see it they are:
That the EM was key - which to me would be unfortunate, I dont see a med system that would be eager to venture into such a kooky seeming area to treat disease
That the cache of bacteria could be somewhere else besides the BB - Which just means a way to screen a whole persons body would need to happen (keep in mind I only started looking around for this cache and landed on my BB because of reading about
that cache scenario affecting disease because of root canals in peoples teeth, I never had root canals so I had to look elsewhere, the BB is just where I got to stop looking)
Or that for some people the cause of disease is going to be something else entirely, no cache of bacteria, no significance to the EM - Which would really suck as then nothing changes for people in that situation until more is discovered.
I am aware of these things, I never took the stance that this is what people here should be doing, this is just my experience that I have been through and wanted to talk about
As to discovering what was and wasnt the case with me, well thats why I went back to the doctor when Ive felt better than I ever have in my life, so she could write my case up and the right people could be found to investigate whats what. I am not that person, if I gave that impression I certainly didnt mean to.
Maybe Ill lose the need to talk about
my experience soon, I just needed to get it off my chest.
I can handle the criticism and skepticism, Im not afraid of being wrong, if I am I will deal with that just as Ive dealt with everything life has thrown at me so far.
This has simply been an account of my experience and my hope that it leads to something doctors can use to help others. They get a chance now to investigate why someone got better, and they have more to go on than simply "it just went away", I did something to cause it to happen, that gives them a lead to follow.
I guess I didnt want to erase my past with the disease, my past brought me to where I am today and I dont know how much my past has made me who I am. I am finding it difficult to talk to people with or without these diseases about
m past and what Ive been through. Is my only option to not talk about
it? How do I tell someone I had the disease and then when they ask why I am so healthy, how do I tell them what happened? To someone with the disease it seems unfair to me to not say anything, to someone who has never had the disease it seems wrong to have to hide the truth of what Ive been through.
I dont know whats gonna happen on that score, Ive always told the truth regarding my disease, Ive never used it as an excuse and having people doubt my word all my life because they cant understand the condition has been hard. Everything I have written on this forum is the truth, it is what I have been through. What it all means is beyond me. Maybe one day it will be completely understood, but that isnt today.
I have had conversations with people without these diseases and the conversations, face to face, have been very similar to this thread, I didnt expect to see the same reaction here.
Maybe I just give what help I can to the Doctors and then put my past behind me and not let the memory of disease and recovering rob me of any more of my time. Theres something about
that idea that seems to ring true to me.
That's something for me to think about
Homer Simpson said it best when he said: "The problem is communication... too much communication" :)
Post Edited (Sir Oinksalot) : 9/7/2010 8:03:54 AM (GMT-6)