NCOT, I can relate to that. It's pretty sad that we can feel so worn out in our 30s, but hey... I suppose that's chronic illness for you.
Choc, debilitated had a number of issues to contend with. fwiw, I think you're a lot safer under the NHS than he was in the US. You seem to have the co-ordinated care that (imho) he lacked, and I think that lack of oversight was at least partially responsible for what happened to him.
NCOT, is it possible that a whole day of volunteering might be a bit much to start with? Why not try an hour or two a week (or fortnight) and build up from there? I find that I need to practice social interaction: if I've been ill and housebound for a while, it can be very stressful even going down the street; being with people all day is just exhausting, and I need to "train" my brain and emotions to be able to cope with it.
Flowery, I've heard that people can get pelvic pain because their internal muscles seize up, just as unhappy back muscles cause bad backs. Apparently this can be helped with an anal massage :-o :-o but I don't know if there are many therapists who would be willing to do this!!! Maybe you could think about
your internal muscles, though, and try to feel if they're clenching?
And yes, it was meant to be a Tuesday post. Sorry.
Co-Moderator Crohn's Forum. Medications for Crohn's
~~ Diet and Nutritional Therapy for Crohn's
~~ Dealing with Abscesses and Fistulae