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Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/10/2010 5:01 PM (GMT -7)   
Try to remember that I was close to crying with fatigue yesterday, so make a huge effort not to embark on some of the insanely energetic schemes that are tempting me this morning :-).

Instead, try to have a tlc day at home:

* deal with ambulance paperwork
* deal with other little hotspots that are popping up around the house
* keep TRYING to get the washing dry (have put all the damp clothes back on the line already)
* soak & wash whites (they're soaking now)
* read newspaper to see what's on this weekend - done
* read
* do some embroidery / sewing / mending
* do some more ironing
* bust some more dust and grime
* make healthy muffins?
* shower and dress
* exercise / movement / stretching
* spirituality stuff
* phone a friend?
* inject Humira (which is overdue because I was too busy to do it and deal with the side effects on Thurs & Fri)

Things I am allowed to do if I keep on feeling energetic :-)

* go to Spotlight
* do a few other shopping-treaty related errands
* take another carload of stuff to the Salvos
* go to Bunnings
* go for a drive. For fun.
Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Dec 2005
Total Posts : 1768
   Posted 9/10/2010 11:40 PM (GMT -7)   
Hopefully I'll be more functional Saturday. If so, will try to clean a little around the house. I'll also need to head to the pharmacy assuming I get ex's dad to call something in.

Hope you have a good day Ivy. Don't do too much and exhaust yourself!

32 yr old female-dx with Crohn's in '97 after emergency resection and appendectomy, 2nd resection '05, Bilateral pulmonary emboli 10/09
Currently on Humira, Omeprazole, Effexor, Seroquel, Calcium, Vit D
Coumadin stopped 3/15/10!!!!

Elite Member

Date Joined Sep 2005
Total Posts : 10404
   Posted 9/11/2010 3:02 AM (GMT -7)   
It wasn't meant to be sunny today, but it was, so I spent some time outside cleaning up the mess and debris from this week's storms. I didn't do a pristine job, because we have more coming.

* deal with other little hotspots that are popping up around the house - dealt with a few
* keep TRYING to get the washing dry - got about half the clothes dry
* soak & wash whites - yes
* read newspaper to see what's on this weekend - done
* do some embroidery / sewing / mending - yes
* bust some more dust and grime - yes
* shower and dress - yes
* exercise / movement / stretching - yes
* spirituality stuff - not yet
* inject Humira - yes. I think I might stick with Saturday from now on...

Watched a movie too.

Wrecked. Am going to bed with dishes not done, and will deal with the mess in the morning, or in the middle of the night, when I often wake...


Becky, I hope you are feeling better.

Co-Moderator Crohn's Forum.

Medications for Crohn's ~~ Diet and Nutritional Therapy for Crohn's ~~ Dealing with Abscesses and Fistulae ~~

Veteran Member

Date Joined Apr 2006
Total Posts : 634
   Posted 9/11/2010 3:58 AM (GMT -7)   
Hey guys,

i'm feeling better today. Yay! Although i'm still going to take it easy, it wasnt fun feeling so rough yesterday. I did get mum to buy lucozade and crackers plus the cheap noodles so i am sorted for food. I'm hoping the rain will vanish for the rest of the day so i can sit outside and get more fresh air. I dont go outside much, which isnt helping me. I'm almost starting with agrophobia.

I'm going to use this psycologist to get into another service, i dont really like him. He's too young. Not too much older than me. Its abit off putting. Almost like there is NO WAY he has enough life experience to help sort me out. He kept agreeing with me. Everything i said was 'yeah yeah'.

I think i was spoiled with my last councellor. She was at my uni and i liked her alot. She was alot older than me, but was full of life experience, like divorce and sending her kids off to uni, moving houses, retraining at an older age. It seemed to help. Nothing i said shocked her. I feel like i could shock him with aspects of my life.

Oh well, no real TLC's for me today other than keep eating and drinking. Going to sit outside for awhile if i can.

Becky - take care of yourself, hope you start feeling better soon
Ivy - go easy on yourself for awhile, fatigue is a killer.

Dx - Crohn's (2006), Depression (2010)
Currently - Humira fornightly, iron infusion weekly, B12 3 monthly, prenatal vits+minerals, 15mg prednisolone, calcium supplement, mirtazapine
Tried - aza, pentasa, questran, infliximab
Episcleritis for 3 weeks x 2, pains in hands, wrists, hips, lower back, knees and ankles

Allergic to Infliximab

Elite Member

Date Joined Jan 2010
Total Posts : 10022
   Posted 9/11/2010 7:18 AM (GMT -7)   
I feel almost guilty, because I woke up feeling very much better than I have done in a long time - and I know it's physical, not mental. Even yesterday evening I felt better (I'm usually a write-off in the evenings), but this morning it was just instantly noticeable.

I really, really wish you guys could feel better, too :-/ ... Mind, one day is nothing. And I was here once before, last year - I got worse, even though I was on 6MP. So to trot out an old and worn cliche: only time will tell.

TLCs for today:

*go for a walk
*reply to text messages/PMs
*think about next steps I can take towards moving out; already beginning to feel a bit paralysed and helpless in the face of it all - absolutely hate that feeling

I'll leave the fish tank until tomorrow :-/
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