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Ever feel defective?

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Crohn's Disease
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mlatida
Regular Member
Joined : Aug 2010
Posts : 129
Posted 10/3/2010 12:24 PM (GMT -7)
This disease also makes me feel defective. I can't help thinking that people like me are at an evolutionary disadvantage. In the past, sickly people wouldn't survive. The only reason I am living is because of modern medicine, not because I am intrinsically able to be healthy. It's nice to say that Crohn's patients and other people with conditions are just like everyone else except that we have various health conditions, but that's not realistic. It's not "just your health" because your health dictates everything else. I was told I could do anything I put my mind to, but that's not true. I am limited what my body is capable of- having the focus and energy to study for school, being well enough to leave the house for social occations, etc. It's unfair; however, bad things happen to good people. I just try to focus on the things I can control. What's frustrating is that I'm the type of person to push myself so I'm always challenging myself and now I'm also challenged by my health which I can't always control.
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Zanne
Veteran Member
Joined : Apr 2005
Posts : 3763
Posted 10/3/2010 12:57 PM (GMT -7)
I'm sorry you feel this way. Personally I think being human makes us defective. Each person has some 'thing' they have to deal with. Ours just happens to be an auto immune disease that makes life difficult. Other people have depression that you may never see until the day they walk out the door and jump off a bridge. Or they have a child who dies and they are left to struggle with the pain of that. Or they have a terrible personality and therefore no friends. Or they live in an impoverished country and live hand to mouth all their lives. I would rather take what I am given and make the most out of my life than think of myself as less than everyone else. Yes, some days are a struggle, but so are some days for everyone else. We are merely human.
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Stef17
Veteran Member
Joined : Feb 2003
Posts : 1811
Posted 10/3/2010 6:08 PM (GMT -7)
When I was 21 I had a friend who had a crush on me. As he got to know me a little better and I shared that I have RA and CD he blurted out, "I could never marry YOU! You're defective!" It stung me so badly. Thankfully he was no one I would have ever considered as more than a friend, so I wasn't totally devastated, but it really made me pause to think, 'Will anyone ever want me?' 'Am I really defective?'

You know what? I came to the conclusion that I am NOT defective. As Suzanne said, we are all human and that makes us defective in some way or another. I can totally understand all the things you hate about this disease, I have felt it all myself. But I have to say that I am grateful. Grateful to have it and NOT something else - something worse, something that will kill me. I'm grateful that I have seen my own weakness and it has allowed me to be more compassionate towards others and more knowledgable about medicine and the miracle of the human body. The more I learn, the more I'm amazed that we're all as "functional" as we are.

You are wise to focus on what you can control. This is certainly not a disease that makes daily life lollipops and roses, but don't feel defective! You're not! Or at least you're no more so than the rest of humanity. Hang in there. I know it's hard. I'm not so upbeat on my tough days either. But keep your chin up. You'll get through this. Most of us in life don't get what we deserve - far too often the good suffer and the bad are rewarded, but there's good and opportunities to learn from all opposition if we look for it.

P.S. As for that dumb guy - don't know where he is today, but I have a great hubby and we're about to celebrate our 9th anniversary. He's wonderful and teases me that I'm "broken", but loves me for all that I am... defective guts and all.
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mdf34
Veteran Member
Joined : Feb 2010
Posts : 925
Posted 10/3/2010 6:19 PM (GMT -7)
I don't so much feel defective, but I do feel like I am, and have been, disappointing people by being sick, spending all this money on pills, DR's and treatment and of course getting trapped in the bathroom when we have plans that are either delayed, or cancelled altogether.  I know it's not my fault, but........
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janicea
Regular Member
Joined : Feb 2009
Posts : 350
Posted 10/3/2010 7:05 PM (GMT -7)
You're not defective, you're "genomically challenged"! you're frustrated and young and wanting to have more fun and ease -- and deserving it. Of course it's unfair. ((HUGS))

It's hard not to feel well, and not be able to run with the herd!! But you like challenges, and believe it or not, even with illnesses there are both spiritual gifts and emotional gifts you get, and things you learn to appreciate that some people run so fast they never see. It's unfair, especially in someone so young of course. But you got dealt a genomic challenge, and you'll live to see it cured, and I bet it's soon enough that you'll see improvements in treatment and a lot more health before you know it. Just not maybe tonight.

There's this old story a shrink told me: A bunch of people are in group therapy, and the shrink tells them to all write their problems down and toss them into the center of the circle they're all sitting in. Then he tells them they can take anyone elses problems they want and trade the life they are dealing with for theirs!

Everyone looks excited for a moment, and then they start reading the other peoples problems to pick the one they want to trade for.

In the end, everyone decides they want their own little scrap of paper back.

The moral to the story is obvious. I guess the advice I have to give is if you can afford it, get some support. A therapist, a shrink (i like them because they are smart about medicine) whatever you can get. It's a spa for the soul if you can afford it. If not, find a friend that let's you ***** until you're done and can make you laugh. My dog makes me laugh. take good care. xoxo
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sr5599
Veteran Member
Joined : Aug 2007
Posts : 1202
Posted 10/3/2010 7:33 PM (GMT -7)
I feel this way sometimes too... I also feel what the others have said, about realizing the things I've learned by having this disease. And, putting myself into perspective along that scale of troubles. It's still so frustrating to not have the energy to keep up with life. I'm a single mom, trying to maintain a house, a house full of kitties, a bunny, a teen, full time work... then I try to think about dating and I throw my hands in the air! I'm lucky to make it to bedtime most days. I just wish I had a little more energy. I suppose I can handle the rest... Sorry you are feeling so down. It's good to vent about it on here because we all understand where you're coming from! I've seen a therapist myself and agree that it's so helpful. I keep thinking I'll journal, but I seem to get into bed and just hit the pillow...
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pb4
Elite Member
Joined : Feb 2004
Posts : 20577
Posted 10/3/2010 11:48 PM (GMT -7)
Yeah, I feel defective due to this disease...I was in my early 20's when I got sick, I joke with hubby that he thought he was driving a corvette off the lot (married me) but he ended up with a lemon with no extended warranty LOL.

However, I don't take traditional oral RX used to "treat" this disease because I'm either allergic or non-responsive, so I have to strongly disagree that modern meds are what's keeping ppl with IBD alive, afterall, I've had it for almost 20 yrs now.

I do agree that having this disesase can and does certainly predict even the smallest things, like maybe the clothes/shoes we wear (I'd have a tough time running to the can in public in high heels for example) and I had to sell my car and buy a minivan and take the back bench seat out and put a port-o-potty in it's place so I could leave my house with some formof security that while driving if I have to "go" then I can and not worry about crapping my pants.

I learned a long time ago that life isn't fair, it is what it is, we just have to do the best we can and if nothing else, at least I've had to become more creative than I already was in order to try and deal with this disease...how many ppl have thought to put a port-o-pot in the back of their van so they have the security of knowing if they have to poop it doesn't have to be in their pants?
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jeanneac
Veteran Member
Joined : Feb 2009
Posts : 1930
Posted 10/4/2010 8:43 AM (GMT -7)
I knew there was a reason I married a man who drives a van. What a great idea. LOL.....

mlatida, I think it's a process that we learn to deal with over time, that's for sure. Sometimes we have to learn to surrender but for some of us, that is very hard if not impossible.
Having colitis really has taken over my life and limited me in ways I don't want to be limited. I miss work, have missed trips and vacations b/c I was sick, don't have any energy and have actually gained weight and I am twice your age. I can't imagine how I'd feel if I was a young person and this sick. I think you would feel far more limited because you are so active when you are young. Do what you can when you feel good and try to work things around your schedule. One thing, this disease has taught me to be more patient with myself and the world and it is ok when I have to miss work etc..... I get really mad when it's a vacation but it happens. We just don't take our health for granted, that's for sure.

P.S. Do you take probiotics? You should talk to your doc about it, especially since you got c diff. It may keep you from ever getting it again.
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NiceCupOfTea
Elite Member
Joined : Jan 2010
Posts : 11084
Posted 10/4/2010 9:51 AM (GMT -7)
Defective guts, defective brain, defective personality. Yes, I feel defective.
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Becktoria
Regular Member
Joined : Oct 2010
Posts : 321
Posted 10/4/2010 10:20 AM (GMT -7)
What a great topic- I have felt defective since the day I was diagnosed 13 years ago. I was 20, just a new university student with a new boyfriend and lots of fun plans like partying, learning, getting out on my own, growing up, etc etc but then suddenly this normally healthy young woman was nearly dead and 90lbs and having seizures and blood clots and brain damage for god sakes..... I felt so defective I thought it was stupid to even bother to live....

however, as many have said above we are all human and 'defective' in our own ways. I think life would be kinda boring if things went well every day- we need some bumps to keep the good times even better.

its funny what pb4 said about the car lot - my boyfriend and I were two young healthy and active people and in the first year or two of our relationshiop when we were hit with crohns and all the horrible times it gave us in our early 20s. We stuck it out- I learned that he is an amazing man when he was only 20- maybe a lesson I would not have learned until we were much older otherwsie. he definitly ended up with a lemon.... but not from his perspective... just from mine...


So i think being sick, especially when you are younger, can make you feel defective- and it is an interesting way to look at it- I have often thought of darwin and survival of the fittest and wondered if i would have been able to go on if not for modern medicine... but hey I am going on and trying to live and make life work for me and those around me.

so yes, i feel defective a lot.... but its ok.... we all are.... maybe not everyone will admit it :)

when life gives you lemons... get a good mechanic!


B
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soccergirl
Veteran Member
Joined : Mar 2003
Posts : 607
Posted 10/4/2010 10:34 AM (GMT -7)
Yes, I feel defective too.  I feel like I can't be the mom I want to be or the wife or the friend.  I'm not doing some of the volunteering that I love because I don't have the energy right now.  I feel like those that are close to me suffer too because of my disease.  I think I've aged my parents because of how much they worry about me.  I try not to dwell on the bad things, but some days it's so difficult.  But, I know how you feel or at least I think I do.  I think all of us here understand. 
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mastersmom
Regular Member
Joined : Dec 2009
Posts : 93
Posted 10/4/2010 6:30 PM (GMT -7)
A doctor once told my daughter that her immune system was 'retarded'. What a thing to tell a young lady. We never saw that doctor again.
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Becoming undone
Veteran Member
Joined : Jul 2007
Posts : 927
Posted 10/4/2010 7:37 PM (GMT -7)
Yes, I understand the feeling defective (and I felt this way often pre-crohn's)...but funny thing, this disease has also given me many gifts too...yes, I cannot do as much, but what I can do, I get to enjoy it like I never did before...for instance, to most people working out or even doing the laundry is a chore, to me it is heaven...I enjoy doing it, for the former I feel invigorated, for the latter I feel a great sense of accomplishment of being able to keep my home beautiful (house proud)...
And then I think about where and when I could have been born...and it really makes me thankful that I am here...I have good doctors that try and ease my pain and symptoms...but so many other places in the world you cannot...
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Becky77
Veteran Member
Joined : Dec 2005
Posts : 1768
Posted 10/4/2010 9:10 PM (GMT -7)
An ex-bf of mine once brought up survival of the fittest. He was saying he wished it was still around. Granted, he was talking about bad drivers at the time...but it really struck a nerve. I responded that if life was survival of the fittest, I wouldn't be here. He shut up really quick (after saying he wasn't talking about me).

I have days when I feel defective. It seems like everything with me comes with complications...fix one thing, break another. Colds last longer, viruses never want to leave, etc. However, I see in times when things are at their worst just how incredibly blessed I am. I have wonderful parents who drop everything to sit in the ER waiting room with me, visit me at the hospital twice a day when I'm hospitalized, a sister who steps in and cares for my cat and mail without being asked, friends who visit and know the little things that help a lot....I could go on and on. We all have to realize what we DO have. With this dd it would be easy to look at our lives and resent not being able to do things, or miss things. I try (no, I'm not perfect, and I do have pity parties from time to time) to look at the things I have. And like someone said, we appreciate little things that others wouldn't. On a day where I have energy, I probably enjoy it far more than a person who has energy every day.

Our "defects" make us who we are. Everyone has defects...no one has a perfect life. It's easy to look at other people and think that they have it better, but if you knew everything about everyone, you'd realize everyone has something they struggle with.
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tsitodawg
Veteran Member
Joined : Sep 2006
Posts : 845
Posted 10/5/2010 12:08 AM (GMT -7)
Being normal is all relative to interpretation. Everyone has their challenges and trials but those do not make us defective or different. Those trials and challenges just make us live life differently but they make our souls stronger. How many of you would even have a clue of how much you could handle without having Crohn's disease? Don't get me wrong, I would much rather live a crohn's free life. Since that is not an option now, I choose to recognize the good aspects of the disease. We all have ups and downs, not too long ago I went through a major down and decided that I will never let my attitude drop like that again. I no longer care how others may view me or my disease because I am the one living my life. All too often we let society dictate how we are supposed to think, feel, and live. We should embrace the fact that we do have a disease and we are incredible humans for being able to live with it. As a religious person I honestly believe that God doesn't give us challenges that we can not overcome and I must be a strong person to have this one. Attitude is 10% of what happens to us and 90% of how we react to it.
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Flaminguts
Veteran Member
Joined : Dec 2004
Posts : 962
Posted 10/5/2010 4:28 PM (GMT -7)
When I am sick I suppose I feel somewhat defective. But that would apply to me when I have the Flu too... I do feel that maybe modern life doesn't suit me. Whenever I eat crappy food - the processed high carb junk tha so many of us eat day to day I end up feeling awful. I went on a carb restricted diet and found that I feel much better.

I don't know if this is true for others, but it seems to work for me - it makes me think that maybe our food systems have been failing us. I think if I were living off the land, maybe I would be at my best. I try to emulate that as much as I can these days.

I still take my remicade as a precaution, but I am off everything else now.
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