It is nice to see someone here from NC. I am being treated at Duke and not very happy with my treatment at this time. May I ask who your current MD is and where? I am just excited to see someone on here living close to me. I too am having trouble with my crohns (really never been in remission except maybe 6 months) since my resection. I had my 1st resection at Duke in March 2009 and had to go back Jan 2010 because my site stayed infected due to a switch that stayed in there. They took out another 2 inches then. I had to quit work at that time because my boss basically said quit or I will have to fire you for missing to much work. I was out so much. I went on disability with the state because I have had a county job. My GI was against going on disability but my primary was for it. I got it based on my history. I wasn't able and still not able to work. My work was too stressful also and i was even worse when I tried to work. I have gained weight since I have been off on work and do feel better than before. I does help to take a break. I really have only had one bad flare since Jan but feel I am having another one now. I am sorry to be going on and on. I tried Cimzia but it didn't work either. The remicade worked wonders about
3 years ago and I am now on Humira. Without the Humira I would be alot worse. My problem with my gastro is she is so hard to get in touch with and will not return calls. It is also hard to get an ER appt with. I also live 2 hrs from Duke. I was wondering if UNC maybe better. I was going to Baptist before Duke but the MD there wouldn't do anything for me. I am just a number at Duke because she has so many patients. Baptist was worried to much about
enrolling me in trials all the time, when I needed surgery (had obstruction and they didn't find it).
Hang in there. Make sure if you do change gastro's to get all your records and keep notes for yourself.
37 yo--Crohns since 2000, Ileocecectomy in 2009 with post surgical wound infection. Surgery again in 2010 to correct wound inf., found MRSA and staples which never dissolved from 3/09, removed a few in. of colon. Also, MRSA infection 2008 x 2 and 2009. Granuloma cysts in mouth-oral surgery X2 in 2000, Fistula colon 2006, Rectovaginal Fistula 2008, 2 Ulcers Rectum, Joint pain. Kidney Stones. Dx with Migraines in 2002 and Ovarian Cysts with Endometrosis 2001. Dx with Fibromyalgia in 2007 and IC in 2008. Now receiving Humira, Topamax 300mg daily, Cymbalta 60mg daily, Prevacid 30mg, Maxalt, Vicodin as needed, and Multivits