Glad you changed the name of the thread. I went back & read it, with just the title being different does make a difference. You are right when you say that I have seen the fragile nature of the human psyche.
You did not offend me in any way. I just want to encourage you to take care of yourself. I feel from your responses that perhaps you tend to take things on. That means feeling very responsible for others and reactive to others (at least internally). There are support groups for caregivers and family members of people with illnesses that you might find support from. There are also books and support online...
The other thing I was thinking was that we could offer you some of the things that our spouses, family members or friends have done that have helped us. Ways they have been supportive and things that don't feel supportive....
The other things I find for myself that helps is to try and learn as much as possible about
this disease and to use lifestyle changes that make me healthier in general. To me the biggest issue is a loss of control...And by learning and doing everything I can to be healthier makes me feel like I have more control over my body. For example diet and exercise.
I now eat healthier and try to at least walk or do some sort of exercise everyday. (sometimes that is just stretching)
Things I find supportive from my husband. When he heats up my rice bag for me. (note he doesn't do it all the time so when he does it's loving) Gives me hugs and says "sorry you're having a rough day" Joins me in just being healthier with diet and exercise. His learning about
this disease and surprising me with a couple of books. (I'm a reader). Wearing a crohns support bracelet. (even if it was only a few times : )...) Things I hate....asking me how I'm feeling....but somedays I want him to ask...go figure?? I hate when he tells me I'm not taking care of myself. I love when he says "we'll get through this".. I guess it's the little things with me. There were times he wasn't supportive. He minimized & was in denial... But we got through it..
You sound like a very support wife! Just by being on here!
I know we had another thread on this... Hang in there..some days will be good and some will be bad. One thing to do on a good day is sit down and ask your husband what makes him feel supported or what he needs from you...then listen.
Diagnosed with CD 2006. Refused to take meds until recently started Colazal.
Currently on Prednisone 40mg. Tapering down, now on 20mg.
Colazal 3xday, Antioxidant strips
Off of the Prednisone!!
I live by faith and not by sight....