Hi Ruthy, just wanted to add my welcome!
I cannot even begin to imagine all you have been through! I am nowhere near as bad and you have all my sympathies for everything you have endured! Good luck on the upcoming surgery, and please don't feel alone. While most of us may not have experienced everything you have went through, we all, in some shape or form have experienced different parts of it. This is a great site for finding answers, gathering information, and just being able to vent about what you are experiencing.
I pray that they manage to get this under control for you.
Dx'd w/ Crohn's in 1979 at age 13. Bad flare 2008 but no health insurance so I dealt with it. Colonoscopy in July 2009 caused a perforated colon, emergency bowel resection. 2 fistula's, perianal and perivaginal.
Humira, probiotic, a multivitamin, Glucosamine, D3, calcium, potassium, magnesium, zinc, and fish oil. I also take Tramadol 50 mg and Klonopin (for anxiety) as needed.Life may not be the party we hoped for, but while we are here we might as well dance!