I can only speak to my experience. Yes, I have pain all the time, but this is symtomatic of severe disease for me, kind of like a chemical burn pain in my guts and anus constantly, and of course severe bone pain (like someone took a baseball bat to me). I am always anemic and get iron or blood transfusions as needed. (Usually try to be proactive with the iron, so I can aviod blood transfusions.) At one point I was going between 30-40 times a day, talk about
one's never ending poop! I really went thru the creams and TP when that was going on. I am down to about
10-12 a day, and on occasional really good day 3-8. I am currently on MTX injections and azo (aka immuran), but that varies by month right now, because I am also female I am having really bad blood loss issues at that time of the month (I get hospitalized, and repeatly so, sometimes several month long periods). Yes, I constantly feel like I have at least a bit of the stomach flu due to this disease and that is the closest thing I can relate it too, but it does not really cover it.
That being said I have been told by several doctors that I have severe non-typical crohns.
For me the pain on the right side is where it hits the open wounds in my TI, and my pain on the left is from the rapid dumping of my bowel. When I have seen it on the xray thing that my bowel on the left side gets to the size of a football, but there is a scarred place about 3/4 of the way up on the football that acts like a bit of a shelf and even after do the first big dump there is always a bit stuck up there, and it is just a matter of movement to get that to tumble down. Of course there is also the pain from the stool moving by so fast in a fairly undigested manner.
For me it help to have stretchy pants so I do not have the additional pain of a waist band cutting in there.
Forum Co-moderator - Crohn's Disease/Thyroid Disorders: All comments have the caveat contact your local health care provider.
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Post Edited (MMMNAVY) : 12/12/2010 6:24:59 PM (GMT-7)