And what happened?
My first type of iron, which I of course can't remember the name of but it's the common one given over a long day, caused hives and trouble breathing. Even with more Benadryl and slowing it down, it was a no-go.
For the second type of iron, we started with baby doses - like 100mg given over an hour or so and added Benadryl. No issues. Slowly we bumped it up because I really needed more than a piddly amt each time. Last time, we bumped to 500mg and it took most of the day to drip. For about a week afterwards, my right foot was swollen and hurt some. Infusion nurse looked up drug info and it said swollen feet was a rare side effect.
Went on Thurs for another one and told the PA what had happened and he wasn't convinced it was a reaction. He thought maybe I stood too long after the infusion and the fluid collected in my foot.
Proved him wrong!
I drove not a mile from the infusion center afterward my infusion on Thurs and my feet felt like they were on fire. Got to the Costco parking lot and couldn't move they hurt so bad. Called infusion nurse who told me to get some Benadryl ASAP. Thought I'd go into Costco and take some but walking was a no-go. You know how later you realize that you should have done X but in the heat of the moment, you just do something else? I should have headed straight back to the infusion center or to the hospital, which was a mile away, but instead I drove HOME (~20 minutes) so I could take the Benadryl there. DOH!
I did make it home, but my legs were completely numb, I couldn't wear shoes, my feet were 4x their normal size when I got out of the car, my hands were also swelling, and my legs were swelling.
Thankfully, massive amts of Benadryl and propping my legs up did cause it to eventually go down. The swelling finally went away by Friday afternoon. This is the first time I've reacted while alone and quite frankly, it really scared me.
Has anyone else reacted that way to iron infusions? Were you able to work through the reaction to continue getting it? I don't go back for another until April but thankfully see the hematologist that time, not just the PA.
I got the impression that there are two types of iron given through IV and now have reacted to both. It seems that the longer I have this disease, the most "reactive" I am to things. Very odd.