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the burning bile acid/low functioning gallbladder

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Crohn's Disease
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katydid1994
Veteran Member
Joined : Oct 2004
Posts : 504
Posted 12/27/2010 12:19 AM (GMT -8)
Hello, I've been a member for years but I haven't posted on here in a long time.

For years I've been having bile diarrhea, but it has escalated to being a constant source of worry and misery.

Last April I realized how I had digressed to not being able to handle any fat intake.  Over that year, I had just really significantly changed.  So I went in for a crohn's checkup and I begged for her to figure it out.

I had went to having frequent dumping episodes, where I randomly have this horrible, barely make it, mass of diarrhea and frequent episodes until plain bile scorches it's way out.  This is accompanied by chills, shakiness, light headed, weak, tired and intestinal pain.  Also, I was getting terrible day long headaches.

I had the gallbladder function test and it came back 33%, she said they wouldn't remove anything over 30%.  She also cautioned that I could just make it way worse.  It appears that now my gallbladder doesn't release bile when I need it, then dumps it all out causing the dumping syndrome, but if they remove it, the bile could just constantly come on down the intestines.

I have taken questran for years, but I don't think it helps in these "dumps".  Does anyone else live with this situation?  I end up terrified of these episodes happening in public.  I am convinced that this bile is keeping my rectum constantly irritated/swelled and adding to proctitis problems.

 

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artist guy
Veteran Member
Joined : Jan 2010
Posts : 1373
Posted 12/27/2010 5:16 AM (GMT -8)
I have those bile dumps everyday, but with my cd unless I don't get rid of it in the morning it will come out sometime during thr day and I have to be ready for it and when I have to go it has to be right now, I stay home or if I'm doing some of my art work and gathering my raw materials I go in the bush, so I don't worry about that, but I won't go anywhere in public unless I have gotten rid of the bile at home, and then sometimes I get what the dr's labeled as the dumping syndrome, but that is due to all the surgeries that I've had. I gives me hypoglycemia. I try to eat 5 times a day (if I can) small amounts. have you tried a gall bladder flush? lots of people in this forum have had they're gb removed, but I'm afraid that bile would hurt my liver or ruin my intestinal wall the gb is important. to break down fats to make bile. I'm doing flush with apple juice, if that doesn't work then I guess remove the darn thing, but I'm gonna flush it first, just can't eat fatty foods, or butter any fats

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katydid1994
Veteran Member
Joined : Oct 2004
Posts : 504
Posted 12/28/2010 10:40 AM (GMT -8)
That's so awful that you deal with it every day, my heart goes out to you.

I haven't tried a flush, thanks for the tip.

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